Benefits of Voice Activated Lighting for People with Disabilities

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Technology has been a key element for increasing the independence of people with disabilities. I’ve written other articles that discuss the benefits of smart homes and how they help people with disabilities increase their independence and self-esteem. There are many layers of technology available to choose from based on your needs and the features you’d like to have available to you in your home. Voice activated lighting is one piece of technology that can be added to many options someone can choose from to increase their home’s accessibility and the individual’s independence

Voice activated lights have the capability to be controlled through specific voice commands instead of being operated with an on and off switch. Depending on the type of voice activated light you choose, it also may have an on and off switch too. This type of technology helps people with disabilities who have difficulty turning on and off conventional light switches due to mobility issues, issues with fine motor control or other limitations that make it difficult to control the lighting in different parts of their home.

There are many benefits of voice activated lights and other types of home automation that help people with different disabilities empower themselves through increasing their safety and independence with these types of available technology. It also allows the person  to save money while managing the electricity use in your home.

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People with mobility impairments can also benefit from using voice activated lighting. They are able to independently control the lights in their home without having to worry about the possibility of slipping and falling. If you have limitations with your hands that make it difficult to turn a light switch on or off, using voice commands to control the lights in your home remove the barrier from operating the lights so you can accomplish this independently. Voice activated lights can be used on their own or through automated systems like Google Nest or Amazon Alexa. They give people the opportunity to set schedules to have the lighting turned on and off or even dim the lights during certain times of the night or day. This is a good tool to use to control the electricity used in your home which can result in a lower electric bill and help you save money.

You can create schedules so that the lights in your home turn on or off in the morning before you get up in the morning. If you work late hours and arrive home when the sun has already set, you can place the lights on a schedule so that you aren’t coming home to a dark residence where all the lights are off. If you plan a vacation where you’ll be gone for a few days, this type of technology helps you set up a schedule, so your lights turn on and off at a certain time each day. These types of innovations can allow you an extra layer of security when you are on vacation.

The price range for this technology varies and it’s a good idea to research which one best fits your needs. Being able to have options to choose from when looking for technology like voice activated helps you learn which option is most budget friendly for your wallet. You can also select the features that fit your needs best to help increase your independence, save some money and maintain your safety at the same time. That can only result in a positive outcome for your well-being and self-esteem.

Why “The Capitol Crawl” is Important to People with Disabilities

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Disability history is a rich well of information full of major events that have shaped the trajectory of not only the world people with disabilities live in today but has also positively impacted the landscape of the United States as we know it.

The Capitol Crawl was one of those important moments in disability history that few people may know about. This article will take a closer look at the details and explain the importance of learning more about disability culture.

Disability activists had been calling for increased access and inclusion in society since the time of the civil rights movement. The planning and execution of the events that occurred the day that would be later dubbed “The Capitol Crawl” are an excellent example of how peaceful activism can lead to real change that has a positive impact on everyone. This demonstration took the disability rights movement into visibility and catapulted the message of inclusion and access into the mainstream like never before

The Capitol Crawl was a demonstration that was organized by activists in the disability community which took place on March 12, 1990, in Washington DC. It was organized by disability activists to get the attention of legislators so that they would move forward in having the Americans with Disabilities Act become the law of the land. The demonstration saw many individuals with disabilities abandon their wheelchairs, crutches and canes to struggle up the steps of the United States Capitol to demonstrate the importance of removing the physical barriers that people with disabilities experienced in society when accessing services in their community.

This demonstration was an important event in disability history because it put a face on people with disabilities who had previously not been as vocal about their needs until the disability rights movement began and demonstrated the obstacles people with disabilities must encounter every day to accomplish routine tasks of daily living. The Americans with Disabilities Act was signed by George H.W. Bush just a few months later that year on July 26, 1990.

Activism such as events like the Capitol Crawl and the passage of the Americans with Disabilities Act helped open doors to level the playing field for individuals with disabilities in society that could only be imagined before the activists took action to gain rights previously unavailable to our community. The impact of the legislation signed into law by President Bush is far reaching and still evident today in schools, places of employment and other aspects of every community across the country. It also serves as an example of what steps should be taken to effectively influence the changes we want to see around us to foster a more inclusive society.

As an additional bonus, the events of the Capitol Crawl were also illustrated in a children’s book titled All the Way to the Top: How One Girl’s Fight for Americans with Disabilities Changed Everything. This book illustrates one girl’s efforts to gain increased access to the world around her despite her disability during a time when there were barriers in front of individuals with disabilities who wanted equal access to the world. This book is a wonderful children’s book that is a great way to start teaching young children about disability acceptance and the importance of disability history.

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Four Ways to Get Your Family Organized for the New Year

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The New Year is a great time to start new routines. It’s the perfect time of year to survey what worked in the organizational department of your family life during the previous year and figure out what you can do better in the coming year to make sure your household runs as smoothly as possible. There are also many health benefits to getting organized. Some people may not realize that getting organized can help reduce the amount of stress in their lives. This blog post will give you four ways to get your family organized for the New Year.

Declutter Spaces. This is a common suggestion you may see people bring up when talking about organization, but the New Year is a great time to take up this strategy. You could even schedule this on your calendars to make sure that it happens twice a year. Scheduling a decluttering session in your home could make decluttering less of an overwhelming thought than it is for some people. If you have kids then they probably got new toys or gifts for the holiday. Why not make this the start of setting aside clothes that no longer fit them or toys and games they are no longer interested in to make way for new items.

Create a Family Schedule. Getting your family organized through a family calendar will help you keep track of monthly bills, homework assignments and projects, school activities and doctor appointments. You could use different color markers to keep track of appointments or deadlines if you decide to use a large calendar. More great tools available are magnetic calendars and boards you could put on your refrigerator. Digital calendars like Google calendar give you the option to color code blocks of time. This is a great strategy to help you know what your day or week ahead looks like based on the colors you choose to assign each event. This allows everyone in your household to get a firsthand look at the activities or appointments scheduled for a specific day or time. It is also a chance to plan fun activities like a family vacation or  even a staycation if you don’t want to leave your own back yard.

Rethink your Household Budget. Budgets make the financial world go around. They are an opportunity for people to empower themselves by knowing what bills they have, when they need to be paid and how they can spend their money throughout the month. Have you wanted to get into more of a routine spending time paying bills or managing your finances? This is a great time to start the habit of sitting down on a routine basis to take care of paying the bills and planning out how to spend your money during the rest of the month.

Search for Coupons and Other Ways to Save Money. When someone says the words couponing, you may think of clipping coupons to use at the grocery store, television shows about people who diligently use coupons to slash their grocery bills or coupon organizers that your mom or grandmother used to use to make ends meet. There are so many more options available now where coupons can be helpful to your budget. There are websites with printable coupons, digital coupons are available through specific stores and there are coupons available in your Sunday newspaper. Sometimes you can also receive coupons in the mail for restaurants or services specific to your area. Credit card rewards points may also be available that can be redeemed for gifts cards to your local grocery store or even restaurants for a fun family night out depending on the rules outlined in each credit card rewards program. All it takes is to set some time aside to plan out a strategy to search for and use coupons in your household.

Once you have created an organizational routine that works for you and your family, it will be easier to incorporate each step throughout the year. Even if you get off track with the approach you have taken to organizing your family and surroundings, it’s never too late to start again. You can use these ideas as a starting point to increase productivity within your home. These ideas and many others can help you keep track of all the important activities and due dates of things that impact your family life. This can help you manage your days better and make your household more efficient because of the systems you have put into place.

Perspectives in Parenting: Interview with A.L.

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In our first interview for our series on perspectives of parenting with a disability, we spoke with A.L. from South Florida. Continue reading this post to learn more about his experience of parenting with a disability.

Question:  What are some of the concerns you had about parenting with a disability before becoming a parent?

A.L:  When I got injured in 2004, my daughter who is now 25 was 7 years of age. One of my concerns was not being able to play sports with her as she was very active with softball and soccer. Also, not being able to have close access to her games due to the fields being all grass and or parks not having wheelchair access.

Question:  What is one of the biggest obstacles you have faced as a parent with a disability?

A.L:  Not being able to easily go to the beach with my kids due to access on the sand.

Question:  What is the most important modification or pieces assistive technology that has made it’s easier and is important to you as a parent with a disability?

A.L:  My hand controls for driving are a must!

Question:  How have your children adapted to you as a parent with a disability?

A.L:  My 25-year-old who was 7 at the time adapted to my situation very quick. She saw that I was motivated and determined so that made it easy for her. My triplets who have only known me in the wheelchair, only have random questions once in a while.

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Question: Can you remember a time where you changed someone’s opinion about your ability to parent with your disability?

A.L:  Yes. When people would see me around my neighborhood pushing a triplet stroller they would smile and tell me how they never thought they’d see someone in a wheelchair take their kids for a stroll so easily.

Question: As a stepparent, do you feel like your stepchildren treated you differently because of your disability?

A.L:  My triplets mother has a daughter who was 5 years of age when I met her. At first she had a lot of questions but adapted very quickly and saw that I can basically do everything that an able body person can just a bit slower.

Question:  What would you like to see change for parents with disabilities?

A.L:  More access for hard to reach places and more cost effective equipment.

Question: Is there anything else you’d like people that are reading this to know about parents with disabilities?  

A.L:  Never give up on trying to do the things you want to do for yourself and your children!

Mama’s Munchkin Blog would like to thank A.L. for participating in our interview. If you know anyone who would like to participate in this series in an effort to raise awareness about the issues parents with disabilities face in our society, please email us at mamasmunchkinblog@gmail.com

Perspectives on Parenting with a Disability

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When it comes to parenting, there aren’t very many parents with disabilities in play groups, after school groups, or even recreational groups for our children. However, there are parents with a range of disabilities in society. Sometimes people are too caught up in our limitations to realize that people with disabilities can be successful parents too. The issues faced by parents with disabilities aren’t really known by mainstream society. We are still seen as people who are incapable of parenting because of our limitations. This misconception doesn’t stop people with disabilities from dreaming and planning to become parents.

Social media posts exist that tell parents to teach their children to be accepting of the kids with disabilities in their surroundings. The first ingredient is for the fear of disability to be erased in adults. People with disabilities are still seen as people who are constantly ill or can’t take care of themselves at all. There is the misconception that it is too cumbersome to afford us the accommodations to meet our basic needs.  People believe we live a miserable existence and there is little positivity that surrounds us. This may sound uncomfortable or difficult because some people don’t know where to start. The solution to overcoming this myth is to find out more information from reliable sources on disability. This should be the starting point to unveiling the unknown of what it is to really live with a disability. Unfortunately, society allows different forms of media to shape people’s frame of reference without having real life experiences to draw upon.

The reality is that people with disabilities are productive members of society who deserve the chance to not be judged solely on appearance. Parents with disabilities are still left in the shadows or criticized for their choice to become a parent in the first place. There are resources, support and pieces of assistive technology available that make the job of parenting with a disability a possibility for those interested in exploring that avenue and a reality to those that are already parents.  On the flipside, we are still parents to children who love us, who only see us as their parents and see our disability as secondary if even at all. It is rarely an issue to kids that we have any sort of limitation. Adding to the conversation of what parenting with a disability is really like is one way to add a layer to a topic that is rarely discussed. It is time that it be brought out of the shadows.

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The way people with disabilities have been treated and portrayed by society has significantly changed for the better. There are more true-to-life stories being told. These accounts unmask what other people are so afraid to talk about. That doesn’t mean further change of people’s mindset surrounding our community couldn’t be accomplished. Acceptance of parents with disabilities is one of the components that could be used as a starting point to get the dialog of what living with a disability is really like.

This may seem like a tall order to fill, even in the 21st century. There are still societal and attitudinal barriers that are faced by the disability community regularly. These only seem to be amplified by mentioning the words parenting with a disability in the same sentence. There are so many related topics that are seen as taboo when you add the fact that some people with disabilities decide to have a family. There are still important issues like healthcare, relationships and over all well being that are ignored for people with disabilities because we don’t need those kinds of services. The reality of the matter is that we need more accessible information to be available so that we can have an increased quality of life. This information will help us make informed choices on the options of healthcare. That is when we will be able to make informed decisions about those subjects. The people who are most cherished in our lives need us to be healthy so we can participate in everyday activities.

It is important to raise awareness of parents with disabilities to the next level. People need to have the opportunity to learn more about what parents with disabilities must overcome even when making the decision of whether to go down the road of parenting in the first place. Sometimes people feel like parents that have a disability will become a burden to their children. Everyone’s child wants to take care of their parents as they age. Parents with disabilities are no different.

The conversations we have with our children and others around us are important in shaping the views people have surrounding a concept. The ideas shared on the subject with their children will help form the belief systems they will carry through their lives. If we can turn the tide to a more positive feeling surrounding disability, that would be a step in the right direction. Then there will be change and as a result mainstream society will see parents and people with disabilities in a more positive light.

Hopefully through the next series of content posted on the blog, questions will be answered and things that some people are afraid to ask will be answered.

What is an Advocacy Toolkit and Why Do People with Disabilities Need One ASAP

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As people with disabilities, advocacy is one of the main techniques we use to have our needs met. While this can invoke stress and anxiety in some people and even prevent them from conquering their goals, it does not have to be that way. Creating an advocacy toolkit may be the solution you have been looking for without knowing you were looking. This post is going to explain what an advocacy toolkit is and why you need one in your life.

An advocacy toolkit is a term I created after years of advocating in different situations with no clear road map to guide me along the way. Creating your own advocacy toolkit provides you with a system to implement that helps you be more efficient in your efforts.  When you live with a disability, there aren’t many “how to” manuals to take the guesswork out of accomplishing your goals. This can leave you scared, overwhelmed, and even defeated before you get started. Some of the items in the toolkit are physical while others are not. Those that are not will require some other investment from you such as time, resourcefulness, or brainstorming. This is when you can get creative and have a little bit of fun involving friends, family, or others in your support system to get involved in sharpening your skills on the way to overcoming each hurdle that lies in front of you.

While some of the issues that people come up against while advocating for their needs are unique to them, there are some things that are standard that can help make overcoming your obstacles a little bit easier. First, let me define what I mean by an advocacy toolkit. It is a set of resources you create to help you maximize your ability to get a positive outcome for your issue.

Organization is a big part of successful advocacy. Choose a designated area to keep your materials. I call that the command central of all your advocacy activities. The benefit of even having a dedicated corner or space for your advocacy projects can be priceless to the overall operation of your success in the world of advocacy.  Advocacy can be stressful. Designating an area to house folders, notebooks and other key materials helps you know where all your materials for each project are located at the drop of a hat. After you sit down in that space, all you need to do is focus on what needs to be done.

Documentation. First it is important to mention that to ensure your success, you should use a system that works for you. Whether you are using a computer program to document certain facts that help you build supporting evidence or if you use regular pen and paper. Your system for keeping notes, logs and other important papers together needs to be something that won’t be easily lost like a loose-leaf sheet of paper randomly placed on your dining room table.

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Resources. Learning all you can about what is currently available to help you in your community is another tool that needs to be in place. It is important to stay up to date on the requirements to utilize the services of agencies or other offices that can play a role and assist you in your desired outcome.

Key Details Know the details of the issue that is an obstacle for you. This is where you focus on the problem in front of you. Is there anyone else who has had the same problem in the past? How is it affecting you? Why is it an obstacle for you? Learn as much as you can about how the system currently works and who is on the front line.

Build your Team. Building your team has many benefits for the advocate. Sometimes we need people to be there to listen to our ideas. Maybe we need someone to talk to if the process gets stressful. Building a team that can provide us with the support we need is a way to figure out who can best encourage you in reaching your goal. It is also a way of figuring out who are the people you need to connect with to help you with information and who are the people responsible for helping you overcome the obstacle in front of you. Sometimes you can enlist family members or friends. In other cases, it is the managers of a company that can help eliminate the obstacles in front of you that you can make connections with to help you along the way.

Become Familiar with Potential Outcomes (or Devise Your Own) Try to find out solutions that have been used in the past. What worked and what did not work? Do you have an idea that seems like it could work as a satisfactory solution? Be open to working together with the other stakeholders and other interested parties to work together in finding a solution that works for everyone involved.

Practice your craft. Advocacy is all about refining the skills you need to get your message across. Whether it is public speaking, writing a letter or learning better organizational techniques, use some of your time to find ways to improve on the craft of advocacy. There are plenty of workshops, books, and webinars you can access right from the comfort of your home to brush up on your skills or even learn new ones that can come in handy for improving your outcomes.

This list can help you get off to a good start at becoming a better advocate. It is up to you to create the system you need that will maximize your success rate. Advocacy can be a stressful thing to take on. When you have fewer things to worry about, it is much easier to use the energy to focus on the desired outcome and how to get there.

Different Methods Help You Communicate with Your Child’s Teacher as a Parent with a Disability

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As parents, we all know that our children’s success in school helps them carve out a path to their future. Part of that success in school is being able to communicate with your child’s teacher and be part of the educational team. As a parent with a disability, you may feel like you face obstacles in communicating with their teachers or even participating in the educational journey they are on, but do not be discouraged. There are many ways to communicate with your child’s teacher.

Whether it’s this subject or another obstacle you may face in accomplishing your goals as a parent with a disability, the best advice I can give you is to create a plan. That plan needs to be specific to your needs. You should have it outlined in your mind at the minimum to know what you are going to do when you need to put it into effect.

When my son began attending school, the options were limited as to how I would interact with the teachers and other school staff as independently as possible. Being unable to drive, I knew issues would present themselves, though I was not sure how I was going to solve the puzzle that was in front of me.  I decided to come up with an alternative way so that I would be able to compensate for my limitations. I was determined to be as involved in every aspect of his schooling as possible and was not going to allow the obstacles that lie in front of me from having the same experience with my child as other parents that did not have a disability. Their school experience is where kids make a lot of memories with their families, and I wanted to share that part of his life with him too.

When it was time to attend parent teacher conferences or meet the teacher, I had to tap into my natural supports to make that happen. Natural supports, also sometimes referred to as organic supports, are a great tool you should already have in place before an event. This will alleviate your need to be worried at the last minute about how you can get certain things done. It took having a network of different people willing to help by being available at specific times so I could participate in those activities.

When the pandemic unexpectedly arrived in early 2020, the ways in which people were communicating and handling their daily lives got flipped upside down. That included how students were attending school. Suddenly, my son was home attending classes over the camera on my computer and he even brought some classes literally into my living room.

On a positive note, the new options that were available not only made things easier but also more accessible. The technology allowed me to interact with his teachers more independently. This helped since I no longer had to coordinate with someone else’s schedule to make sure I could participate in a school meeting.

Things like using email communication, phone conferencing or video conferencing allow you to have open communication with teachers and other staff people. This is a great option to allow open communication whether they have an issue with the student that needs to be addressed or if you have a concern you need to bring to their attention. Suddenly, the limitations your disability might place on you have disappeared and are no longer a factor. You can focus on the matter at hand which is your student’s educational needs.

The most important thing is to be a proactive and involved parent on your student’s educational journey. Research the ways you can participate in the school’s events. Make a plan you feel good about and is functional for you. As a result, being able to be a present and proactive parent will let your child know they are loved and supported.

When interacting with their teachers, reassure them you are a proactive parent and are there to support your student and the teacher in their work. Not only will these steps help your student succeed in their educational life, but you will have the chance to make memories with them that will give them a chance for a successful future.

Dating Someone with a Disability: A Few Things You Should Know

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Dating can be an exciting part of life. It gives you the chance to meet different people and learn about the different kinds of relationships people can experience in their lives. Dating a person with a disability may not have been anything you have considered before. Maybe you have dated someone with a disability and felt like you went about it all wrong. In the second part to this blog, I wanted to share some tips for people without a disability who might be interested in approaching someone with a disability to go on a date or begin a relationship with that other person but don’t know where to start.

We are people first. The main thing to know is that people with disabilities are people first. This idea came from a movement of self-advocates who wanted people without disabilities not to define them by their disability. The shift in the way people address those with a disability takes the focus off the disability and keeps it on the individual, where it should be. People with disabilities have interests, jobs and outside activities that shape who they are. While the disability is a part of that person, it shouldn’t be the focus. The same is true for you if you decide to go on a date with someone who has a disability. Not only will they be impressed with you not focusing on whatever limitation they have to live with, but they will know you’ll be giving them a chance to get them know them as a person instead of being caught up in a disability they more than likely see as secondary to who they are as an individual.

Every disability affects people differently. Even though a large population may have the same diagnosis, that doesn’t mean that the disability presents itself in the same way. Whatever you may have read may not be accurate. If you have any questions about someone’s disability, it is important to get the facts from the person themselves. That person is the expert on how their disability affects them. It’s a good idea, once you have become comfortable with each other to find out the facts of that person’s circumstances. Don’t make assumptions based on what you have seen or read about what that person’s life is like. Once you get to the point of learning more about how that person’s disability affects them, you may be surprised what you learn.

Get ready to learn something new. Dating can be an exciting journey for so many reasons. You get to meet different people; you get to have new experiences. Dating someone with a disability is no different. The only additional perk is that you will learn new things about how people with disabilities accomplish tasks. Most of the time people with disabilities must think outside the box to get things done. Seeing life through someone else’s eyes by spending time with them gives you a new perspective on how others navigate the world. The area of assistive technology can also show you the possibilities available by helping people compensate for the limitations a disability puts in front of them. Assistive technology are pieces of equipment someone with a disability can use to help them accomplish tasks someone without a disability can do without assistance.  Seeing someone use a piece of assistive technology may also change the way you look at the world. These devices are a great way to demonstrate in real-time that a person’s limitations, physical or otherwise don’t have to limit their experiences in the world.   

Be open to new experiences. Dating someone with a disability can open your eyes to many things. It can teach you about the importance of accessibility of spaces or even inclusion of people with disabilities. You may go into a relationship with someone and feel like you know everything about a disability because of what you may have seen on television or heard about from a friend. A disability affects each person differently and the only way to know about how the disability affects that person is to be open to what you may learn or in a new experience.                                                                                                            

Be yourself. Let’s face it, everyone is nervous when it comes to dating. If you even look like you are being made uncomfortable by a person’s disability, your date is basically over.  On the other hand, if you find that you have things in common and can relate to each other simply as two people on a date, the odds will be in your favor that you’ll have a good time with that person. Your date will appreciate the environment and be excited to spend that time with you. If everything goes as well as you both hope, you’ll be on your way to scheduling a second date soon.

Remember, no matter what happens at the end of the date, dating people with different disabilities gives you a chance to broaden your horizons on specific topics. Our lives are not much different than other people and given the chance you probably will see for yourself that dating someone with a disability can be a great experience for you both. You may learn something new or even learn more about yourself on a personal level. You never know what is going to happen, you may have just met your future spouse and started making memories together.

Contributions Made by Ed Roberts Still Impact the Lives of People with Disabilities

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Although people may not be aware of how disability history has shaped the path of people with disabilities, some people may find it interesting that there have been many people with disabilities who have influenced a lot of activities and initiatives in existence today.  Many individuals with disabilities have placed their stamp on American history.  In this post I am going to discuss why Ed Roberts’ contributions to the history and advancement of people with disabilities has impacted people’s lives in today’s environment.

This week the disability community celebrates Ed Roberts Day. He is one of the most important figures in disability history for many reasons. Ed Roberts gave the world a blueprint of how to live your life and accomplish your dreams despite your disability. Diagnosed with polio at the age of 14, he did not let that stop him from pursuing higher education and advocating for change that are now considered standard practice for people with disabilities. He is one of the people who led the way in the disability rights movement and showed that people with disabilities could do more than be defined by their physical limitations.

The idea of independent living would not have gained momentum during the time it did if Ed Roberts had not advocated for the rights and equality of individuals with disabilities. His efforts paved the way for the chance to live in our communities while having access to needed supports that would ultimately improve our quality of life.

He broke down barriers for people with disabilities to have an opportunity to experience independent living when other people said that we could not.  He laid the foundation for people with disabilities to have the chance to live on campus during their college years, live independently with the supports they need, and be gainfully employed. If Ed Roberts would not have set a path in front of himself during his life, the struggles of people with disabilities in these areas may look considerably different today. There may not be a framework in place to allow students with disabilities to believe higher education or employment could be a possibility available to them.

During his time in college at The University of California, Berkley, he established The Rolling Quads. This group of students with disabilities would be the model of what students with disabilities service offices look like on most American campuses today. They worked together to create needed resources for students with disabilities to succeed in completing their education. This included what they crafted into accessible housing and making the first strides toward advocating for accessible architectural changes in their surroundings. 

Ed Roberts is also known as “The Father of Independent Living Movement.” He along with a group of other people with disabilities started the first Center for Independent Living. Now widely utilized within communities across the country, Centers for Independent Living provide a range of supports and resources so that individuals with disabilities can navigate life within their communities. 

Ed Roberts later became the Director of Vocational Rehabilitation in California. This agency is charged with assisting individuals with disabilities in obtaining a job. It can also assist you to tap into other needed resources to help you during your employment journey. These resources can minimize the obstacles a person with a disability may face in their line of work. In this role, he also proved that an individual with a disability can successfully oversee an agency.

As a result of his pioneering efforts, Roberts helped people with disabilities live more independently and expand on opportunities for a better life. People with disabilities can live within the community. They can have the full college experience, complete with living in the dorm rooms if they are available at your chosen higher institution. They can also be gainfully employed and hold a position of authority at the same time. The stereotypes he was able to crush helped move people with disabilities in the direction of being seen as people who can make valuable contributions to the world.

Learning about historical contributions of individuals with disabilities shows it is not a negative thing to have a disability. It is also clear evidence that those in the disability community can have positive and lasting impacts on the framework of society.

As a community and as individuals we should follow his example. He did not let his disability be an obstacle to what he wanted in life. The key is to follow your heart and not worry about what others say. Take the torch he has left for us and continue with the mission of advocating for full equity in all areas of life for people with disabilities.

His example encourages us along our paths even though we may feel like some things are insurmountable. There are steps everyone needs to follow to accomplish what they want in life. This is also true for individuals with disabilities. The only difference is that we must sometimes be more creative along the way. It is only a matter of plotting out the course of our lives and seeing things through to their completion.

Goal Setting Empowers People with Disabilities for the New Year and Beyond.

Featured by caste551, posted in Uncategorized

Once again, we have made it to another New Year. So many people think about making a New Year’s resolution, but do we really realize where the idea began? New Year’s resolutions were started over 4000 years ago by the ancient Babylonians.

New Year’s resolutions are helpful because they make you think of how you can make changes in your life for the new year. All this positive energy is a great way to start a new year. New Year’s resolutions also carry a certain amount of pressure. This is true because if you do not complete your New Year’s resolution, it may discourage you from making other changes in your life. New Year’s resolutions generally get a lot of attention during the first couple of days or even weeks of a New Year only to fall haphazardly to the wayside with last year’s calendar.

On the flip side, goal setting with long-and short-term goals in mind may be a better idea for you. For some reason, people do not think about goal setting as something they can or should use to get important things done regularly. Maybe you think of goal setting as something that should only be used for long term or large projects, or something done in a work environment. It is possible you might think goal setting is something that is difficult, and you are not sure where to start. Although defining your goals may take some time and resources, the rewards are worth it.

There are many ways to motivate yourself to get in the habit of goal setting that can make you a rock star at achieving each of your objectives in life. There are many tools to use that make goal setting a fun and an easy thing to do. Once you get in the habit of taking time to outline what you need and want, the adventure has begun. It is completely up to you how to track your goals. You can use calendars, note cards, post it notes or your phone to monitor your progress. The only thing you must do is make sure the system you choose works for you. It is okay if you find it necessary to test different methods or even combine a few to figure out what works best for you. Make sure to write your goal somewhere that you are going to see it every day. It is also a good idea to create daily action steps toward making your objective a reality. These are things you must do to make sure your goal is achieved. It is just another way to keep your needs at the forefront of your mind. Whether it is reviewing your notes on the progress you have made or talking to a friend to get encouragement, both are productive steps to keep you focused on your desired result.

Goal setting is a great way to get into the habit of taking steps to see actual change come to life right in front of your eyes. It is also an effective tool to use to minimize your chances of getting frustrated or overwhelmed by your situation. Another positive thing about goal setting is that it can help you see your progress in manageable stages instead of trying to tackle a large project in just one afternoon. Seeing your goals through to completion will also help increase your self-esteem and further empower you in the choices you make for your life. It will be clear evidence of your abilities and the methods you used to get results. This could also be your personal playbook on approaching other similar situations and minimize the potential legwork needed next time.

For many people with disabilities, advocacy is a big part of having our needs met. Goal setting is a great tool to use when you are approaching an advocacy project. It gives you an opportunity to focus on your needs and even map out a way to get there. Once you see the progress you have made, it can give you the motivation and self-esteem to complete any project. Using goal setting for both types of issues gives you an opportunity to monitor your progress, celebrate milestones and keep track of the amount of time steps take to be accomplished.

Using the methods put forth in goal setting can be helpful in many aspects in the life of someone with a disability. It can not only help you achieve great things throughout the New Year but let you work on your advocacy skills at the same time. Seeing your goals become a reality is a great way to increase your feelings of empowerment when it comes to choices you make in your life. Not only will the idea of goal setting help you set yourself up for success in the New Year but will help you practice skills that will make you a success in other aspects of your life too. That is a goal anyone would want to reach anytime of the year.

Coping with Holiday Stress

Featured by caste551, posted in Uncategorized

Since the holiday season is in full swing, I thought it would be a great time to talk about coping with holiday stress.

For most people, the holidays are seen as being full of happiness and joy. It’s a season to spend time with your families and be happy making memories.  

What I feel we forget is the fact that some people have difficulty making it through the holidays for various reasons. Maybe they have lost a loved one recently or maybe they cannot be with their loved ones due to the distance of where they live. There are so many reasons someone may struggle through the holiday; we just don’t know. All these reasons are valid and the individual going through this situation should be able to take time not only to take care of themselves but find ways they can enjoy the holidays on their own terms. Maybe that means having a plan of action where they can participate with family members and loved ones at their own pace.

The stigma still surrounding mental health and mental illness issues has no place in today’s society. No one should feel like less of a person for the struggles they face in this world. Part of the problem that makes mental health issues worse is that people feel isolation and shame for being unable to express their feelings. Not enough is known about these issues and that makes the general population uncomfortable. The more we allow this subject to be left in the darkness, the more unnecessary fear will continue to plague our loved ones and the family members of those people. Because we have so many resources available due to technology, we should do everything we can to learn more about how mental health affects our loved ones. If we can help locate valuable information, we can be a guiding light in their lives so they can feel supported and heard all the time.

Either way, it is time to take the subject of stress and mental health out of the shadows and make it more acceptable for people to be open about the struggles they face. This may even be a subject that makes some people feel uncomfortable to talk about. If we can open real lines of communication with the people we love and trust so they can see other people have vulnerabilities too, they would not feel so alone. Because mental health issues are invisible disabilities, they sometimes don’t get the attention or even the credibility they need so they can be properly addressed. Starting the conversation can at least give people a chance to learn from one another. This dialog may also be a way for people to find out what they can do to support that person in their lives.

It is also a good idea to have a safe space to go to where a person can speak freely with others going through the same experiences. There are so many avenues that can be explored so that people do not feel alone on their journey. Keeping to a familiar routine can be a way to minimize the anxiety of upcoming festivities. Implementing time management strategies into your life so that you don’t spread yourself to thin when deciding which festivities work for you. Maybe journaling or tapping into an artistic outlet can help them manage their situation in the moment. Then they can get back to the task at hand that needs to be addressed.

We should be mindful of our mental health and of those we care about not only during the holiday season but throughout the year. This is one way to ensure everyone we care about knows they are supported and have people in their corners that will have their back. We should be there all the time to support our friends, family and neighbors when they need us. There are things we can do to help the people around us know they are not alone in their struggle.

People need to know that it is totally okay to have difficulty around this or any other time of the year. We need to be kind to one another and really lend an ear not just as something that sounds like the trendy thing to do but as something that becomes the common place thing to do for one another.

Taking the lead to remove the stigma surrounding mental health issues in our communities comes with numerous benefits. Talking more openly about our mental health as part of a complete wellness approach will open communication about this topic between individuals, their families and the community.  Strategies and solutions that work for the person can be implemented seamlessly into their lives. Once these conversations are brought into the mainstream, the positive results can increase not only during the holiday season but throughout the entire year.

Breast Cancer Awareness Month and its Importance for People with Disabilities

Featured by caste551, posted in Uncategorized

October marks breast cancer awareness month. This is the month that was chosen to highlight the importance of getting routine mammograms and raise awareness about breast cancer.

Due to the pandemic, there has been a drop in going to get preventative screenings completed. This can have serious implications for your health and possible long-term prognosis.   For both women with and without a disability, it’s equally important to stay current with mammogram screenings. Mammograms are used by doctors to find early signs of breast cancer. It’s very important to get a mammogram on a regular basis. The first experience of getting a mammogram may seem scary to some but once you have gone through the process, you may see it as an empowering step you have taken to care of yourself.

For people with disabilities, there are many concerns we need to be able to discuss openly with our health professionals. Some of these topics, such as breast cancer screenings may seem uncomfortable or taboo to talk about but need to be addressed. Make sure you have a healthcare provider you feel comfortable talking to about sensitive issues. They are there to help you take the best care possible of yourself.  Make sure you are open with them about your medical history. If you don’t feel like you can openly discuss your medical issues, it may be time to find a new provider.

Preventative screenings are one way for all women to be proactive when it comes to health. Doctors will tell you to complete self-checks even before it’s time for your mammogram. Self-checks may be difficult to do if you have a disability but, it’s important to do the best you can to complete them. It’s also important for you to take note of any new moles or markings you may notice in between appointments and screenings They may just be your body changing as you age but, it’s always important to be familiar with things and get a doctor to look at them just to be sure it’s nothing potentially dangerous to your health.

When you make an appointment, you can let the person taking your information know you will need assistance during the exam. Be sure to follow the pre appointment instructions you are given to be prepared properly on the day of the appointment. Once at the appointment, you can let the technician know how they can best assist you so they can get an accurate test done.

When your primary care doctor receives the results, they will notify you of their preferred method they use to communicate the results to their patients. Some doctors will require you to make an appointment for an office visit to talk with you about the results. Because of the pandemic, some doctors may convey the results to you through a telehealth visit.

Mammograms are one of the easiest things you can do to help take care of yourself. Finding breast cancer early helps you have a higher chance of winning the battle against this terrible disease. Don’t be afraid about asking for help during your mammogram or talking to your doctor about questions you might have when going to get a mammogram.

Speaking up to get the preventative care you need has many benefits. You can help the doctors become more informed on the health needs of people with disabilities. It will also help you advocate for the care you need. The effort you make now can help save your life.

DISCLAIMER TO READER: The content of this post is for informational or educational purposes only, and does not substitute professional medical advice or consultations with healthcare professionals. Consult a medical professional or healthcare provider if you are seeking medical advice, diagnoses, or treatment. I am not a doctor or mental health professional. My blog is not a substitute for professional medical or mental health advice, diagnosis, or treatment. I am not liable for risks or issues associated with using or acting upon the information on my site.

The Importance of Grassroots Groups for People with Disabilities

Featured by caste551, posted in Uncategorized

Grassroots groups have helped many people spark change around the world for different reasons. They have also been instrumental in championing social justice issues throughout American history. Grassroots groups are one of the best kept secrets in the toolbox of people with disabilities too. The only problem is they aren’t utilized as much as they should be. To help readers improve the resources available to them in their advocacy toolbox, here are 6 benefits of a grassroots group for people with disabilities.

Become more familiar with different aspects of advocacy. Advocacy can be such a long and confusing process. In order to be successful advocates, people must learn the ins and outs of each step that needs to be taken to reach a goal. Sometimes this may overwhelm people. The more we become active in an issue and see the advocacy process in motion, the more knowledge we can gain about how effective advocacy can work in our favor.

Strength in Numbers. This is a common saying utilized in areas of social change but is a concept that can be used for many reasons. Getting involved in a grassroots group is a great way to find people with shared goals surrounding an issue. The idea that many people are involved in efforts to solve a shared problem helps increase awareness and show the importance of finding a solution to others who may not know enough about the issue. There may be someone following the progress made on the situation that holds the key to influencing solutions that can push the issue forward on a larger scale.

Pool of Resources. Once you find a group of people who share an interest in making change surrounding a cause, you may find yourself networking with them to find out what they can teach you about a subject. You can create a plan to work together to streamline the process of solving the problem.  Be open to learn from each other and try to find out what didn’t work before. These details can help you solve the issue that much faster. You will have the opportunity to learn about resources that are available or share your knowledge of resources with someone who may not have such a broad knowledge base. Building a reliable toolkit of resources is all about learning from one another.

Taking action for change. Participating in activities to create positive change for yourself and others is one way to act on issues important to you where you believe there needs to be change.  Seeing the results of your work can be a powerful motivator to spur you on to increase your advocacy efforts in that one area or expand your efforts to other issues. It can be evidence for you that your voice matters and the actions you take to raise awareness and change an issue for the better can make a difference, not only for you but for those around you. Once you see real proof from the work you have done, there is no stopping the way you can influence the change necessary to positively impact any issue affecting people with disabilities.

Sense of Community. One of the biggest benefits of grassroots groups is growing a sense of community. Everyone needs to know they aren’t alone in their struggles.  A grassroots group allows you the opportunity to meet people with similar experiences who you can learn from but also find a place to have shared commonalities. The support that results from such an environment will positively impact your self-esteem, your self-confidence, your sense of community and the strength that comes with being surrounded by a strong support system.

Boost in Self-Confidence and Empowerment. Anytime it’s possible to make positive change in our lives can be a huge self-esteem booster and a source of empowerment. Too often the media and social norms have engrained in us that people with disabilities aren’t powerful. This is the farthest thing from the truth. Because of the activism taken on by people with disabilities they have capitalized on the power of raising awareness in their communities. As a result, huge changes have been made in the United States because of these efforts. We need to harness that momentum and use those examples of advocates that came before us. Building on the foundation they carved out, we can continue the work that will lead to further improving treatment and increasing rights for people with disabilities.

The only thing left to do is to decide which disability issue you want to get involved with. First, learn as much as you can about the issue that is important to you. Next, find out what organizations in your area are trying to advocate for change in that area. Then, contact the organizations or groups to find out about available opportunities to get involved in their activities. Decide if there is something available that is a fit for you. Then, last but not least, GET INVOLVED!

The difference these activities will make in your life will not only change the way you see the world but give you tools to make a difference that will be felt by not only yourself but, others around you. You will be seen as a trailblazer in your own right that made a mark on society on their own terms. That will make you a leader in your community and a person to follow by the example you’ve put forth.

Reflections of the Contributions Made By Justin Dart, Jr. on the 32nd Anniversary of the ADA

Featured by caste551, posted in Uncategorized

As the anniversary of signing of the Americans with Disabilities Act of 1990 (ADA) approaches, it’s hard not to think about the contributions that Justin Dart, Jr. made to the disability community. It’s also hard to ignore how the culmination of his advocacy and efforts of increasing awareness about issues faced by people with disabilities was met when George H.W. Bush signed the Americans with Disabilities Act of 1990. There are many contributions that Justin Dart, Jr. made to the advancement of independence for people with disabilities that is relevant more than ever today. This one piece of legislation had a profoundly positive impact on the lives of people with disabilities. His efforts not only had an impact on the passage of the landmark law but can also be felt more than 20 years after his death.

Widely recognized as the “father” of the ADA, Justin Dart, Jr. came from a prominent background. When he contracted polio in 1948, he became a wheelchair user. From then on, he championed causes for people with disabilities.  Justin Dart, Jr. traveled around the country before there was wheelchair access at hotels and other places that make travel easier for people with disabilities today.   He is also responsible for being one of the co-founders of the American Association of People with Disabilities (AAPD). This agency is responsible for starting the REV UP Campaign and the push for increased participation of voters with disabilities during each election cycle. This movement started to let voters with disabilities gain awareness about the power their voices can have when it comes to voting for elected officials.

Continued advocacy is still needed surrounding voting and people with disabilities. Although polling places may not be completely accessible, the ability to vote is vital to the disability community. By voting for politicians who we feel will best address our issues, we help put into place people who will be instrumental in being a part of finding ways to address various issues that affect our community each day. Because of the example Mr. Dart left us when it comes to political activism, people with disabilities should know their votes count, their voices matter, and they can make a difference in what happens in our country.

Too often, people with disabilities are afraid to exercise their right to vote because they think their voice does not matter or they cannot make a difference by voting. In my opinion, Justin Dart, Jr. is an excellent example of what happens when you focus your advocacy efforts to make substantial change happen for yourself and others. The mark he left behind on the fabric of the disability community and the world is what effective advocacy can do when you keep your eye on the reason you began your advocacy journey in the first place.

Mr. Dart gave us the starting point to voice our opinions in a way that allows the disability community to be a part of the process that shapes the political fabric of our country. His activism in the political arena led to further empowerment of people with disabilities in the hope that there would be a change in the way the disability population was viewed by other portions of the American public.

There are so many disability activists who have made a difference with the changes they helped bring about that have resulted in changing the way people with disabilities live and participate in the world. It is up to us as a community to learn about the contributions disability activists made and continue the work they started. It’s imperative that we continue advocating for other issues to increase our independence. The disability community must take the lead on educating others not in our community about important contributions these individuals made to improve our independence in society. The resulting dialogue can be the icebreaker needed to move the conversation forward about what it really means to live with a disability. As a result of these interactions, the disability community can finally be seen as people, not just the limitations physically visible at first glance.

Only then can we as a community have our needs met, be fully included, and accepted as productive members of society who can make a positive difference in the world. This is not only important for the disabled community that is an active, vibrant population now but also for future generations. There must be further understanding of what work still needs to be done. This will help us have more knowledge surrounding how far we’ve come to cherish the rights and voice we have molded in modern society.

We should study what Justin Dart, Jr. has left us meticulously so we can appreciate his efforts and the results he was able to achieve. This should be the blueprint of how to overcome whatever obstacle is put in our path due to our disability. Speaking up for ourselves and others should be the catalyst for the change necessary to improve our standing in society and how disability is viewed within our communities. This type of advocacy is not only necessary to move our community forward on various levels but is the right thing to do to continue the work Mr. Dart started so many years ago.

The Importance of Home Modifications for People with Disabilities

Featured by caste551, posted in Uncategorized

Accessibility is something most people don’t give a second thought. It may even be taken for granted. Home modifications for people with a disability are essential for many reasons.

As a person with a disability, living in a home without the modifications you need amplifies the limitations you already know you have. You may have to make concessions in your life that you wouldn’t otherwise have to make. It may also leave you feeling upset and frustrated about your surroundings. Home modifications are the most reliable way to ensure that you can maximize your independence while maintaining your quality of life.

Modifications to increase accessibility aren’t home renovations. Referring to home modifications as home renovation makes it sound like something that is being done to your home for the purpose of luxury. The modifications a homeowner with a disability needs to have completed are so they can have basic access to their home just like anyone else would need to live comfortably in that space.

Home modifications offer many benefits to a family member of a person with a disability. Home modifications offer many benefits to the members of a person’s family. Once a home modification is completed it increases peace of mind for family members. Because of the modifications put into place, loved ones can be at ease about your increased independence and accomplishing tasks that can help you maximize your ability to fully participate in the things you love to do.  Modifications made to your home offer you the chance to feel comfortable to move about in your space with a certain degree of ease. You will feel the difference within yourself and your family will see the positive changes these modifications offer to improve your life in a variety of areas.

Independence and Increased Self-Esteem. The independence a home modification can offer you can increase your self-esteem. When you have a modification completed for you, your independence increases. You no longer have to rely on others to help you complete certain tasks. Being able to do things on your own can increase your self-confidence in your abilities. Your limitations can begin to take a backseat to give you a chance to make a pathway to embark on the adventures that interest you the most.

Safety. The safety and peace of mind home modifications offer is extremely important. The most important part of accessibility of an environment includes making the environment safe. Simple changes that increase the functionality of a space for a person with a disability allows them to not worry about having an accident that could lead to serious injury or hospitalization. This increases the opportunity to enjoy activities that would otherwise be difficult and unsafe without those changes.

Greater access to the world around you.  When you have access to the world around you, you can experience the world from your point of view. It gives you the opportunity to have the freedom to choose from things you want to do or see with family, friends or even on your own. Things like traveling or visiting a museum where you can learn new things becomes a possibility. These experiences help you learn more about things like history or other cultures.  

Increase your problem-solving skills. People with disabilities must proactively problem solve to maximize their ability to live independently. If you have recently purchased a new home, navigating how you are going to get around in your new surroundings may be something that can cause some stress. Figuring out the options available to be as independent as possible and accomplish what needs to be done in your home can seem overwhelming. There are many resources available to help you determine what the best options are for you. All you need to do is conduct a little bit of research to see what is available that best suits your needs.

Increases your feeling of dignity. There is nothing more gratifying than feeling like a person that can maintain their dignity by taking care of themselves. Home modifications allow you to take care of your daily needs independently. There is no amount of money that can equal the satisfying nature of being able to take care of yourself without having to worry if anyone will be available when you would like to do things like take a shower or cook a meal.

Increases your ability to live in your community. People with disabilities who can live in their community have more opportunities to interact with others. This could be as simple as being around family members or close friends. It gives you the opportunity even pick a cause that is important to you and get involved in activities to further that cause. The social interaction that comes along with this helps increase your enjoyment of life and experience overall better health.

Home modifications may take a long time to be completed but pay high dividends. People with disabilities should be able to live in their community. Home modifications give them the chance to do just that. They help people with disabilities have a higher quality of life. Having home modifications in place allows you to have experiences with family, friends and others around you that may not otherwise be possible.

While home modifications can sometimes be a bit on the expensive side, it’s worth doing some research to find out what resources are available to make these options a reality for you. When the home modification is finally completed, it’s like a breath of fresh air. Like a weight has been lifted off your shoulders. Home modifications allow you to overcome the physical barriers that once existed to be able to start enjoying the life you deserve.

Origins of The Mama’s Munchkin Blog

Featured by caste551, posted in Uncategorized

This year marks the 10th anniversary of starting this blog. In the past, when people found out I had created a blog they always wanted to know the reasoning behind it. So, I thought I’d take this time to give you the inside scoop on how it all started.

I originally started the blog because I wanted to set off on the journey of having a family. I knew that it wouldn’t be easy. I knew I was going to have to do some research and learn as much as I could about how my pregnancy would or would not affect my disability.  I knew I was going to come up against obstacles I hadn’t faced before in my life because of my disability. I was also curious about what technology was available to help me along the way. My first goal was to be proactive and start to solve the problems I could see up ahead. I began looking for information and resources on parenting with a disability.

I don’t think disability is as rare as some people make it seem. Due to an array of different reasons, the population of people with disabilities is growing regularly. Medical advances are also allowing people to live longer lives. We may have to think outside the box to overcome our obstacles but that makes it like a continual puzzle that needs to be solved until the next challenge arises.

Since the information I was searching for seemed nonexistent, and I had some experience writing, I decided to be a voice of information and educational resources. I also wanted it to be something fun so that whoever came across the blog could gain a positive understanding of what living with a disability was truly like.

So many times, disability has had a negative connotation surrounding it. Complicating things, I had run into people that were second-guessing my parenting abilities with no concrete evidence. They were making assumptions based on my outward appearance. Dating, family, and other topics that are of a personal nature always seemed taboo. Honestly, I’ve never seen those topics that way and wanted a place for people to know that we are all just human beings.

Becoming tired of seeing and hearing a lot of negativity surrounding living with a disability and the misconceptions people still have about it, I want people to understand it’s not the end of the world and people with disabilities are no one’s charity case. The blog is here as a source to get meaningful information on how to overcome each obstacle and find a better perspective on the best ways available to move forward under different circumstances. Anyone who is interested in learning more about this topic is also welcome on this journey. They can trust this to be a source where they can get pointed in the right direction and encouragement to achieve their goals.

I thought about how people would be frustrated and needed a reliable resource to look toward and know they weren’t alone. I had no idea what the blog would turn into. It’s been an information source that has raised awareness about different issues that are important to me and the disability community. It’s also been a place where people connect and find resources they need. I am happy that it has grown and has such a loyal readership. In the coming years I hope the blog continues to grow and be known as a source of reliable information and a place where people can leave comments to questions they might not otherwise feel comfortable asking in other settings.

Relationship Tips for People with Disabilities

Featured by caste551, posted in Relationships and Family

Most people feel like Valentine’s Day is just a day for stores to sell lots of candy and Hallmark cards. Valentine’s Day is really a day set aside to celebrate love and the loved ones we have around us.

Relationships can be complicated. Sometimes the idea of dating can even be a little scary. For a person with a disability, they may feel an extra sense of anxiety when they think about dating.

People with disabilities should know they are worthy of companionship just like anyone without a disability. As a person with a disability sometimes you may feel like you are not supposed to want to venture into the world of dating. Maybe you feel like people won’t look past your disability to see what you have to offer someone else in a relationship.

Here are four tips to help you put your best foot forward when looking for a romantic partner.

Be confident. This may sound like a no brainer, but some people really struggle to be confident of themselves. Whether you’ve been disabled all your life, or your disability is a result of an accident you may have had later in life, it’s important to be confident in everything you do. Just because you have a disability doesn’t make you less of a person. Take some time to focus on the positives in your life to help you improve your self-image and what you have to offer anyone lucky enough to go out on a date with you.

Focus on your strengths. Everyone has strengths they can offer someone else in a relationship. Take an inventory of your strengths and let them shine when you are out on your date. Focus on your positive qualities with that person and they will focus on what you have to offer them as a potential partner.

Everyone has limitations. Some people’s limitations are more visible than others. You shouldn’t let your limitations hold you back from finding the right partner. This could even be your opportunity to help people learn more about your disability. The example you set of what it is to live with a disability could help erase any misconceptions they might have about people with disabilities.

Be yourself. Don’t try to be someone you are not. If people are truly interested in you, they will take the time to get to know you, the person. Your disability will be an afterthought to them as they get to know you and the qualities that make you the person you are. Make sure you share with them the things that are most important to you.

Most of all don’t forget to have fun. Dating can be a series of adventures. It is an opportunity to learn more about yourself, other people, and the world around you. You can go places and see things you may not otherwise get the opportunity to experience in other settings.

Don’t limit yourself or put yourself in a box. Don’t ever feel like you’re not good enough because you have a disability. You have the right to have the same experiences when it comes to dating as other people.

Even if you don’t find Mr. or Mrs. Right on the first try, you may be left with some interesting stories to tell your friends about when it comes to dating.

Whether you end up having a second date with that person or nothing comes out of the date, at least it was something you were able to experience. You never know what you may find.

The Benefits of Having a Doctor with a Disability as Part of Your Medical Team

Featured by caste551, posted in Uncategorized

In recent years, there has been a lot of discussion about employing more doctors with disabilities in the medical field.

Having a doctor with a disability taking care of your medical needs has many benefits. It has a positive impact on the patient, and parent or caregiver in addition to creating a shift in the mindset of society about disability.

As a patient with a disability, having a doctor who is also disabled has a positive impact on their overall experience in a medical setting. It not only gives them someone who can relate to their issues on a more personal level, but can also help break the barriers of what society has projected disability to be. The patient can see that someone’s limitations don’t have to be a barrier to what they want to achieve in their lives.

The patient or even their parent can see that disabilities don’t have to limit career choices or the future we create for ourselves. The patient can see that not only can their medical needs be addressed by someone that can potentially better relate to their circumstances, but they can also see a real-world example of how someone can overcome their limitations to have a career that makes them happy.

Suddenly, the added stress they might sometimes feel about going to the doctor and having to justify other issues has suddenly melted away. They can address the actual reason for their visit. They get right to the point in your medical care and are that much closer to finding a solution to the problem at hand.

Sometimes parents aren’t sure what life with a disability is going to be like for their child. If they see adults with disabilities as doctors, or other professionals in different fields, they can gain a different perspective about what someone’s life with a disability can look like in the future. The doctor or other professional may even be willing to share advice on how to reach their goals while living with their disability. This might also help the parent understand how to better help their child reach their dreams. 

The more society gets to see doctors and other successful professionals with disabilities in our society, the more likely it is that a lot of misconceptions about disability will change for the better. Society can get the chance to really recognize that people with disabilities can be productive and contribute to society in positive ways.

People with disabilities can achieve a career goal and even live in the same communities while making a difference in the lives of other people. These examples should be a catalyst to change how society views disability. It should also be a motivator so that those with a disability don’t feel like they can’t achieve whatever goal they set for themselves.  

If you are lucky enough to have a doctor with a disability, you get to see that people with disabilities don’t have to be put in a box when it comes to what they want to do for a profession. The limitations we face can be overcome by some form of modification or accommodation. Seeing someone with a disability in a high-status position can help you go after your dreams, whatever they might be.

If you are a person with a disability and you want to be a doctor, a lawyer, or anything else, anything is possible. Don’t let your limitations stop you from accomplishing your dreams. There are so many people with disabilities that currently have influential jobs or positions in the community. The only thing left to do is research what it takes to be a part of your profession and start down the path to success.

Tips for Recharging Your Energy as a Parent with a Disability

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Being a parent with a disability can sometimes require more energy than you know you have. It’s possible to sometimes find time and pace yourself in the jobs that need to get done during the day to keep your household running. Finding time to recharge may seem like a difficult thing or maybe even a bit selfish.

The coronavirus pandemic has also caused extra stress in our lives as a society. More than ever, it is important, not only to spend time with our kids but also to recharge our batteries. Finding the balance to both is one of the keys to success.

When I first became a parent, I felt like this was something I shouldn’t do. I felt like my son needed my attention all the time and if I couldn’t be there for him day and night, I was doing something wrong. After some reflection on those ideas, I realized it’s not an all or none situation. When I thought about it some more, carving out time for myself, separate from my family responsibilities is one of the best things for me to do for my family and for myself.

You may have to work to schedule the time in so that you can make this happen but, it is totally possible. It is important to note that the ideas listed below can also be used by parents without a disability. These are five ways to make time for yourself to recharge your batteries:

Exercise. Even as a person with a disability, it’s important to get active. There are a lot of options available to help you do that. Adaptive sports or adaptive self defense classes exist so that people with disabilities can participate in many different pastimes that can be lots of fun. There are now also many opportunities to have virtual fitness and yoga classes that can fit your schedule.

Reading or Audiobooks. Reading has proven benefits such as lowering your blood pressure. Reading can help you learn something new or relax by catching up on the latest best-selling paperback. It also gives you the opportunity to be transported to places you may not otherwise have the opportunity to visit.

Sleeping. Getting some extra sleep is always a good thing. Sleep can help reduce stress, regulate blood sugar, and keeps your heart healthy. During the earlier years a lot of new parents can experience a lack of sleep because their baby is adjusting to a sleep schedule. It might also be a good idea to take naps while your little one is napping too.

Watching television/Streaming services. There are so many options available today to watch your favorite television show. Whether it is binge watching your favorite episodes of Gilmore Girls or The Mandalorian, there is something available for everyone in a commercial free format.

Focus on Yourself. Get back to basics and unplug when possible. This might be things like learning a new hobby or skill. Maybe it means taking a bubble bath or a long shower. Maybe it’s time to tap into the many workshops, classes or other peer support groups you can find online.

Like with most of my lists, don’t limit yourself to these options. Find things to do that are important to you and communicate with loved ones to help with babysitting duties if necessary. Most of the activities listed here can be done during nap time or if a babysitter just isn’t an option for you.

The pandemic has changed the ways in which we interact with each other. Some of the ways we have available to us now give us the opportunity to interact and access resources like never before. It’s a good time to look around and inventory what interests you. More than likely there are resources available for you to tap into that can meet your needs. 

Once you come back to your family and your daily routine you will be able to be rested and more able to be present to handle whatever life sends your way.

Reflecting on the Americans with Disabilities Act 31 Years Later

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This week marks 31st anniversary of the Americans with Disabilities Act (ADA) of 1990. It was signed into law by President George H.W. Bush on July 26, 1990.

This anniversary gives us a moment to think about how this law for people with disabilities has impacted our lives. Reflecting on how this piece of legislation has impacted the lives of people with disabilities helps us understand where we have been. It also helps us gain a better perspective of where we need to be.

Being a person with a disability in the 1980s, when people with disabilities didn’t have the rights we have today was very interesting. I was also a person who used a wheelchair to compensate for my lack of mobility.  As a kid, the idea of going to school was both exhausting and exciting. I liked being with kids my age but had to struggle just to get in the building or use the bathroom. The idea of my school being accessible for me seemed like a dream I wasn’t sure would ever come true.

By the time I got home, I was exhausted from the trip. Then I had to make sure to get my homework done for the next day. Being mainstreamed at 7 years old left me with another job. I had to explain to the kids in my class why I had to use a wheelchair to get around.

When I went to high school, I remember having to advocate for my English class be relocated to one if the lower floors for my junior year. At that time, the school’s elevator didn’t reach the top floor where the classroom was located. That was after the ADA had been signed into law, but before buildings were fully brought into compliance. It was a major victory for me as a student because it meant that I could be in an integrated setting with other kids who were just as smart as me. If that didn’t happen, I probably wouldn’t have been able to receive the education that matched my intellectual abilities because of my physical limitations.

These may seem like simple things people with disabilities don’t have to endure now but, they help us appreciate the changes that have been made to improve the lives of people with disabilities. That’s not to say other advances do not need to be made to continue the necessary progress. There are still many areas where things need to be more accessible for people with disabilities. Only then will the Americans with Disabilities Act be fully utilized to ensure access to services for all people with disabilities.

While there is still much work to done, it’s safe to say that the advocates who came before us left a good framework on how to engage in effective advocacy that sparks real change. Their work has also allowed us as a community to recognize where further change is needed. Now it is our chance to continue where they left off. Our efforts can be the catalyst to help us finally gain the ability to be fully integrated into mainstream society.

A Review of “The Fault in Our Stars”

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It’s not too often I watch a movie that talks about disability in any way.  It’s not because I am unwilling to be open about disability being portrayed in a movie, but because I find most times the representation of people with disabilities in a film or other artistic endeavor is negatively skewed. Some movie roles have shown an inaccurate depiction of what it’s like to have a disability. People with disabilities have been shown as weak, or like they can’t take care of themselves. It always makes me think of characters like Quasimodo and how hard the disability community has had to fight to overcome such antiquated stereotypes.

Since starting the blog, one of my goals has been to increase disability awareness in different areas. One of those areas is disability representation in the media. Continued debate exists about allowing actors with disabilities to fill roles that portray someone with a disability. The other issue is the way people with disabilities are depicted in the media. Because of various reasons, we are depicted mostly in a negative light. It makes me wonder if the way Hollywood shows a person with a disability contributes to overall misconceptions society has surrounding people with disabilities.

The movie I was lucky enough to watch is “The Fault in Our Stars.” There is also a book by the same name. Honestly, I was apprehensive about seeing the movie. I had heard different things about it that made it seem like it was just another movie that shined a negative light on people with disabilities. Despite what I had heard, I decided to give it a chance. I am so glad I did. Although the movie was sad, it gave what I felt was a realistic depiction of living with a disability.

The movie is about two teenagers who meet in a support group and fall in love. They both have different forms of terminal cancer. I was impressed with how the parents of the characters allowed their children to live independently despite their limitations. This can be a scary concept for the parent of a child with a disability. It can also be a very helpful tool for both the parent and the child. The child gets to gain life experiences and the parent can witness their child gaining independence and navigating their lives with resources available to them. When one of the characters got the opportunity to meet her favorite author, the movie was honest and showed the obstacles she faced getting around the city she was visiting. Additionally they didn’t shy away from showing how she overcame the barriers that existed to make it to their meeting place.

I don’t think living with a disability is about sugarcoating things. I really enjoyed how this movie did anything but that. It showed how people with disabilities aspire to do things in life. It also showed how they can realistically accomplish their goals. I was impressed that the movie writers were brave enough to show that people with disabilities could fall in love. This is an aspect of living with a disability that some people are afraid to talk about but happens all the time.

There have been other books and movies that show people with disabilities as people who should be hidden away from mainstream society. Others send the message that they should be protected so much they don’t have the opportunity to enjoy life. That is not what living with a disability is all about. Each person has a different experience with their disability. However, we all deserve to reach the goals we choose to set for ourselves. I felt like this movie made people with disabilities look like real people. Maybe this movie can help make the topic of disability less scary for others who don’t have experience interacting with someone who has a disability.

I would definitely recommend this movie for anyone who likes a comedy, drama and bit of a sad story. I look forward to finding more stories that include disability in such a realistic way.

It gave me renewed hope that maybe in the future people with disabilities and the roles written around these characters aren’t ones of pity and dismay. As a result, society can gain a more realistic foundation of what life is like for people with disabilities.

Experiences of Parenting with a Disability Help Increase Disability Awareness

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Mother’s Day is a time to celebrate mothers and all they do. Since Mother’s Day was this past Sunday, it made me think about how I’ve used the experiences of parenting with a disability I’ve had through the years. There are three main ways I’ve used my experiences. When I thought about it more, all of them are important to raising awareness of issues surrounding people with disabilities too.

Some people would say that parenting isn’t for everyone. The same could be said from the perspective of a parent with a disability. Every time I give my speech about parenting with a disability, the main message is to do your research before you make any choice.

In the beginning, I didn’t realize the challenges I would face when it came to the way people reacted to me being pregnant. The same was true after my son was born. I wasn’t even sure how I would compensate for my physical limitations. It was both exciting and left me with a sense of apprehension. I was also adjusting to the weekly changes my body was going through from the pregnancy. Some of those changes made life a little more complicated. I was happy to go through these challenges because of the new adventures and experiences parenting was going to allow me to have with my baby.

Because I realized that my son learns from my behaviors and how he sees me react to others, I didn’t want to give him a negative example. I decided to use the experiences and turn them into something positive. The three ways I highlight in this post can have a positive impact on society and the way it perceives people with disabilities in a variety of ways.

The first way is to educate the public. There have been times in a store or even when my son played soccer where people have confronted me with their misconceptions about people with disabilities. Sometimes they have said blatantly mean things to me about being in the outdoors or out in public.  Instead of having a negative reaction, I use the opportunity to let people ask questions. This approach is surprising to them but, I believe it’s the only way to help get rid of the unnecessary fear or misconceptions they might have. Most of the time it has created an ongoing dialogue with the people around me at the time it happens. Once people see there is an available space to ask questions, they seem more at ease. It allows them the chance to gain a better perspective into the human experience of disability.  Hopefully, it helps them not be so afraid at other times when they may encounter a person with a disability.

The second way is to advocate for issues related to parenting with a disability. Luckily, I have had previous experiences advocating for myself and others for different reasons. For someone who feels like advocacy is a scary or intimidating topic, it’s never too late to start sharpening your advocacy skills. It can be an exciting journey where you learn more about yourself and the way each organization functions. You can also tap into different avenues available in your community for help. Whether it has something to do with school, sports or getting to my son’s doctor’s appointments, I’ve had to advocate for different issues. Other examples include requesting needed accommodations to attend a parent teacher conference or using a delivery service to get a prescription. For the most part, once you express a need there are people around willing to lend a hand.

The third way is to foster a sense of acceptance and understanding of people who have different limitations. For example, it takes me a little longer to get on the floor and play with my son. He has  learned to be patient with me and even figured out ways to help. Having a parent with a disability helps children be more patient with their parents, themselves and other people. Because he has watched me adapt to different environments, he has a greater awareness of his surroundings. There have even been articles stating that children of parents with disabilities develop greater emotional skills and are more empathetic than kids whose parents are not disabled.

Everyone’s journey of parenting and parenting with a disability will be different. The most important part is to enjoy the ride because it goes by quickly. Parenting with a disability tests your strengths and limitations like you would never imagine. It provides great rewards that are worth every moment spent overcoming obstacles and sharpening your skills. The result is an experience no one can take away from you. It will strengthen the bond you have with your child for years to come.

Coronavirus Vaccination Chronicles: Part One

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The coronavirus pandemic has forced us to spend the last year at home. Because vaccines are now available and being administered, it’s time to restart interacting with others more regularly.

I wanted to write this post to share my experience of getting the vaccine.  I also wanted others who haven’t been vaccinated yet to get a better idea of what to expect about the process. This is a three-part series detailing my experience being vaccinated with the Moderna vaccine.

Since the vaccines being used to fight the devastation the virus is causing in different countries was approved so quickly, I was a bit apprehensive about getting the vaccine.

Most vaccines go through rigorous testing before they are considered safe and effective for people who choose to get vaccinated. I felt like this was the best choice for me so that life could start to return to some sort of normalcy.

Although I am getting vaccinated, I can do my part by continuing to wear a mask and practice social distancing when I have to leave my house. There are still people who haven’t been vaccinated for various reasons and others they may come into contact with that could inadvertently be affected by my actions.

I thought that getting the vaccine would be as easy as making an appointment with my doctor. After doing some research and calling my doctor, I found out he didn’t have any doses of the vaccine available. It turns out they weren’t sure if or when they would be administering doses to patients. They directed me to the CDC website so that I could get the required medical necessity documentation. The documents were sent to me electronically, so I didn’t have to go to their office.  When I looked into the other options available to me, I found out that the local health department was administering doses. Some stores such as Walmart, Sam’s Club and Publix were also options for people interested in getting the shot. Since I know that Publix has given out flu vaccines in the past, I was comfortable in choosing them as my preferred option to get my vaccine.

I had to get up early to complete my online reservation. Once I was on the website, and because I was not an educator or part of the age requirement at that time, I had to wait a while to input my information.  Once my appointment was reserved, I got a confirmation email with both my initial appointment as well as for my second vaccination.

I must admit that I was a little nervous the night before the appointment. It was honestly because I did not know what to expect. I’ve been vaccinated before with no problem, so I think it was fear of the unknown. Regardless of the anxiety I was feeling, I was determined not to let it stop me from this first step back toward the active life I had pre-pandemic.

We arrived at the grocery store and they had a designated person checking people in for their vaccine. When I got back to the pharmacy, I let the pharmacist know that the shot needed to be given to me in my right arm due to my disability. He had to correct my card and move the chair but was quick to adjust to my request. The vaccination process was quick, and I was on my way as fast as I had gotten to the store. This experience makes me a bit more at ease when it’s time for my next dose.

Now it’s your turn. Do the research necessary to make the best choice for you and your family. Don’t be afraid to talk to your doctor to figure out the best option for you. I will be back with more of my post vaccination experience.

Students with Disabilities and Gaps in their Education During the Pandemic

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During the coronavirus pandemic, the way education is delivered to students in the United States has drastically changed. Students with disabilities are more affected than most by this change.

Students with disabilities are caught in a situation they didn’t choose. How they get their education has been altered so drastically, portions of their daily routine have become nonexistent. Related services that were part of their Individualized Education Plan (IEP) have been slashed to a minimum or eliminated. Few services can be delivered effectively by virtual means or by the student’s parents. Parents are left at home attempting to deliver services they are not trained to provide, potentially causing their student unintentional harm. For example, if parents try to assist in physical  therapy sessions, they could hurt themselves or their children because they aren’t trained in the correct techniques. There have even been instances where it seemed to the parent that the student’s impairment was totally disregarded. This left the time used for the therapy session like some sort of preliminary fact-finding mission, instead of building on progress previously made during the last session.

School officials try their best to modify plans and deliver needed services. Because the pandemic happened so quickly, they are poorly prepared to do so. Even now, more than a year into this model of learning, educators are on a continual learning curve they just can’t get ahead of, while students are left behind. It makes you wonder how this set of students going to school during such an unusual time will compensate for the gaps being left in their education in years to come.

Although students are missing their friends and the socialization aspect traditional school offers, some parents of kids with disabilities find themselves in another dilemma. The student with a disability might be at a higher risk of contracting the virus. As a result, parents feel they have no other choice but to keep students in the virtual model of learning. Parents must take extra precautions not to come into contact with the virus. There might be other risks involved with exposure to the virus. If a student contracts the virus, they could have other health complications as well. The million-dollar question becomes how do we get all our students back to school so they can receive their education and services properly, while staying safe from the virus at the same time?

In implementing any reopening plan, many factors need to be considered. First, the health of the students and how to catch them up on the material that is being missed. Students need instruction and guidance about things like social distancing, proper handwashing and most difficult of all, consistently wearing a face mask. Some individuals with a disability can’t wear a face mask for medical reasons. If that is the case for a student, an alternative plan needs to be implemented. Lastly, the health and well-being of the educators must be considered as well.

Currently educators are at the front of the line when it comes to receiving the COVID-19 vaccine. Additionally, other workers such as speech, physical and occupational therapists need to be added to that list. These workers need to be considered essential and should be prioritized. One of the goals in returning us to pre-pandemic education is to fully open schools. That can’t be done unless these support personnel whose aim is to provide related services to students with disabilities get vaccinated too. They ensure students stay focused on their education while making sure their therapeutic needs are met regularly.

These are merely a starting point of suggested guidelines to help students with disabilities get safely back to learning in the classroom. The positive steps we take to rid ourselves of the virus will give kids the opportunity to move forward and make the progress they need to confidently succeed as young adults, well-prepared for different kinds of adversity.

The Importance of the IDEA for All Students

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Thinking about how far I’ve come professionally, it would be wrong not to talk about how the IDEA has helped me achieve my goals. The IDEA or Individuals with Disabilities Act is a very helpful tool for students with disabilities.

Each law related to people with disabilities is intended to give them a better opportunity to achieve their goals in life. The Individuals with Disabilities Education Act (IDEA) is no different. Before it was enacted into law in 1975, its original name was the Education for all Handicapped Children Act. This law helps students with disabilities get the education and supports they need. It helps them receive accommodations to go to school in an integrated environment with other children.

Socialization is an important part of going to school and growing up. Being included and integrated with other kids has many benefits for everyone involved. It gives students with disabilities the opportunity to get the full school experience. It allows kids without disabilities to be exposed to another person’s perspective. This interaction gives them valuable experiences at an early age. It will also influence their behavior as they get older.

While I always did well in school, I remember some things about the experience that have always stuck with me. Being mainstreamed in the 3rd grade, I had to explain my disability to other kids. Most of them were very curious to find out why I had to use a wheelchair to get around. This doesn’t mean all my school experiences were positive ones. Being exposed to students who had different reactions to my disability allowed me to be better prepared for how people might react to my disability as an adult. In my opinion, I have been able to take this point of view and use it to try and inform others about the abilities a person with disability possess. It’s been a good teacher on how to get that conversation started with people in the first place.

If it had not been for the accommodations that were given to me in my Individual Education Plan (IEP), I think school would’ve been a lot more difficult. It’s not because I didn’t know the work, but because of the limitations I had to overcome just to get the work done. Of course, I had transportation that allowed me to get to school. I have to say getting therapy in school helped me keep a regular school schedule and I didn’t have to miss any extra time to get to and from appointments. Because of the educational supports I received, college and beyond were a possibility for me. I was not only able to complete, but excelled in my studies.

Parents and students should stay up to date on what’s going on with their student’s education and related services. As part of the IEP team, they should maximize the delivery of services needed and keep up with their advocacy skills. This is an effective strategy to hold team members accountable when things aren’t going according to what is agreed upon during each meeting.

I know students with disabilities are having difficulty right now because of the pandemic. Parents and their students should be patient with themselves. Continue to sharpen and maintain their advocacy skills. This will help preserve their rights and maintain services they need now and beyond. Connecting with local advocacy and special education groups that offer webinars and other resources can also be beneficial. This will help you learn about techniques and other methods available to maximize desired educational outcomes. Advocacy groups can help if you need to find someone to go to a meeting with you or advocate on your student’s behalf. Using these tools successfully will allow a path for your student’s educational and life goals to be achieved in the future.

The Inauguration of a New President of the United States and What it Means for People with Disabilities

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Along with the Inauguration of a new president and vice president of the United States, comes new possibilities for people with disabilities.

As I sat watching history being made when Kamala Harris took the oath of office, I realized she has knocked down many barriers. Not only for women and women of color, but also for people with disabilities.

The theme of inclusion and unity was not only prevalent but relevant during the historical event.  Because Vice President Harris is now in office, the possibility of further inclusion for all is now a reality more than ever. The firefighter who led the Pledge of Allegiance in spoken word and sign language was a surprising change. It was also a sign of the times. In my opinion, it symbolizes the dedication the current administration has of including everyone in this country, even people with disabilities.

When President Franklin D. Roosevelt was in office, he spent most of the time hiding his disability. Researching the political climate that existed during those years for other projects I’ve done on his presidency and its importance for people with disabilities, I’m not sure society would have been accepting of openly having a person with a disability serving in a political office. The fact that he occupied the highest political position in our land may have made it even more mind-boggling for some. During Roosevelt’s time, people with disabilities were hidden in the shadows. Individuals with disabilities were regularly being housed in institutions instead of in community settings when possible. We had not gained the rights from laws like the Americans with Disabilities Act just yet. The ADA helped people with disabilities acquire the opportunity of a level playing field to accomplish individual goals. It also gave them the chance to be more active and visible in society. That includes things like voting and even running for political office.

The possibilities available to us now are only limited to how big we allow ourselves to dream. Since the passage of the ADA, people with disabilities have been making strides to increase not only representation but acceptance of our community into the mainstream. Society is increasingly interested in diversity and inclusion more than ever. That conversation cannot be complete unless people with disabilities are part of the equation.  It’s more likely now that a young person with a disability can see themselves as the next vice president or even president of the United States.

This is the perfect opportunity to increase our visibility and make our mark on society. The steps we take today to let our voices be heard and our influence felt can only help us move the ideas of what it really means to live with a disability forward. We can be the reason long-standing myths are eradicated and new ideas become the norm. There are always opportunities to change the outdated and inaccurate stereotypes that surround disability.

While there are disabled politicians such as Senator Tammy Duckworth (D) from Illinois, who currently occupies a political office, for some reason this seems different. Now is the time to set goals and take action to increase representation of people with disabilities in all aspects of society. Every step forward is needed and welcomed. Every victory toward increased representation should be celebrated. We can accomplish anything we want to achieve. There are so many aspects of society that need the input of the disability community. The only question that remains is what is the most efficient course to chart in pursuit of your personal success?

Varying Communication Options Necessary Now More than Ever Due to the Pandemic

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During any sort of emergency, it’s important for people with various speech and hearing limitations to have the ability to communicate and receive information effectively.

Communication is important to get ideas and information across to people. Most people don’t give the simple act of communicating a second thought. People with hearing and other communication  disabilities must have the information conveyed to them in a way they can understand while being able to communicate their needs as well. Effective communication is extremely important in these instances.

Simply put, effective communication means whatever is written or spoken must be as clear and understandable to people with disabilities as it is for people who do not have a disability. For people with hearing disabilities, utilizing the services of an Oral interpreter or an American Sign Language interpreter are excellent examples that help facilitate effective communication.

Oral interpreters use silent lip movements to repeat spoken words. American Sign Language is visual in nature. Sign language is not a universal language. Just like there are many different languages spoken around the world, each country has its own sign language. It’s also important to know that American Sign Language (ASL) is not the same as English. For example, it may not be effective communication to use note taking with an individual who is deaf in place of American Sign Language. The best way to avoid any guesswork or miscommunication is to ask the person what type of communication works best for them. It’s important to remember that the individual is the expert on their disability. They know what is best for their particular situation.

An ongoing theme I stress in many of my writings is the availability and use of assistive technology. Assistive technology (AT) is any item, piece of equipment software program or product system that is used to increase, maintain, or improve the functional capabilities of persons with disabilities. Assistive technology takes many forms. Most recently, there has been an increase in the use of 911 to text messaging. This not only helps someone who can’t speak due to a dangerous situation, but also someone unable to communicate due to a speech disability or other impairment that hinders communication.

AAC devices can also be another option for communication. Augmentative and alternative communication (AAC) devices help people with communication disorders express themselves. These devices can range from a simple picture board to a computer program that synthesizes speech from text.

In a news story recently broadcasted, the work of sign language interpreters was highlighted. It showed how they bridge the gap of communication to help deliver important information. The impact their work makes on people’s lives, quite often behind the scenes, is crucial to allow access for all.

It was good to see the sign language interpreter out in front because it showed that not only were government officials doing their due diligence to ensure everyone has access to needed information, but was a visible acknowledgement of an ongoing effort for increased inclusion in the community. During a time of so much political divide and uncertainty in our country, it felt like a way our community was somehow being unified. The fact that the local news station invested the time and effort in putting the story together also demonstrated a shift toward further inclusion of people with disabilities in society.

The availability of accurate information is always important for everyone. People who are deaf, hard of hearing or have other communication disabilities are a population that must receive communication and be able to express ideas in alternate formats accessible to them. Sign language interpreters and other varying modes of communication are an integral part of that equation. They provide a gateway that wouldn’t otherwise be available but continues to be extremely needed.

Back to School Survival Guide

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Parents getting ready to send little ones off to school experience mixed emotions. As a parent with a disability, the experience isn’t any different.

During the time of a pandemic, it can seem even more nerve-wracking. Safety concerns are now more common. We need to take precautions for our children and family like never before. While keeping this in mind, don’t lose sight of the adventure school can be for our students. This is an exciting time in both you and your child’s lives. The learning and growth of our children that happens each year molds them into the adults of the future. Making preparations before the first day of school is sure to help create wonderful memories. Here are some ideas to help you get through the first few weeks of a new school year.

As parents, we are our children’s first teachers. When our kids go to school, their teachers add a layer to that learning. Although going back to school looks different now because of the pandemic, it’s important to encourage your child to do their best and enjoy the experience.

“Meet the Teacher” is typically the first thing that happens before the school year starts. This is a critical time to speak with your child’s teacher so you know their expectations of your student. It’s a good idea to work with them to form a collaboration. During this meeting, teachers can be reassured you are there to help your child while also being a source of support to them. The collaboration you form can greatly benefit your child throughout the school year. 

A valuable strategy you can use to get your child ready for school is implementing a routine at home. Routines can be of great assistance to our children for many reasons.  They provide a sense of security and certainty to how they are expected to behave. Routines also provide a schedule that lets students know the amount of time they have to complete specific tasks. Routines are also helpful for students so they can anticipate what comes next in their day at home and school. 

Don’t be afraid to be an involved parent in your child’s education. When people see you have a disability, it opens up avenues of communication. It allows people to ask questions they may otherwise be afraid to ask. As a result, your interaction with them can even dispel stereotypes they might have about people with disabilities.

Keeping up with your child’s assignments and adding to their learning experience can enhance your student’s education. Working with your child’s teacher to find out what’s going on in the classroom can be helpful in many ways.  Being informed about classroom goals gives you an opportunity to implement certain activities at home. Games and television shows can be chosen that are geared toward ideas being taught in school. This gives your child a chance to practice what they’re learning at school on weekends. These activities can provide reinforcement of important concepts.  As a result, kids can be better prepared for the materials being covered in the classroom. 

This year some parents have decided to use the distance learning option offered by certain school districts because it is the best choice for their family. Setting up a separate space for learning at home is a great idea. It helps kids stay focused on their schoolwork. Having a morning  and after school routine is another good way to put your child in learning mode. This gives kids an opportunity to prepare themselves for interacting with their teacher virtually. They can also have set activities to help them wind down at the end of the day.

Due to the nature of the pandemic, technology is being used more frequently and is more acceptable than ever before. The truth is, it has always been there to lend parents with a disability a helping hand. Technology can become your best friend to make communicating with your child’s teacher easier.  Things like Skype, email or even the phone can help you schedule conferences or quick chats to stay in the loop of what’s going on with your child’s progress in the classroom.

Having open communication with your child’s teacher using these techniques will help increase your child’s educational success.  If your child happens to encounter issues at school that need to be addressed, knowing all expectations beforehand makes it easier not only to troubleshoot problems, but increases the chances of promptly remedying the issue. 

These are straightforward ideas available to anyone. However, when you are faced with certain situations, you may not be sure where to begin.  Hopefully, you will use this as a survival guide or the beginnings of a road map that can help you come up with something similar that works best for you and your family.

“Crip Camp: A Disability Revolution” on Netflix Gives a Glimpse into Disability History

Featured by caste551, posted in Uncategorized

During the recent coronavirus quarantine, I found out Netflix had a documentary called “Crip Camp: A Disability Revolution” available to subscribers of the streaming service.

The documentary piqued my interest. I had to find out what it was all about. Upon further investigation, I found out this documentary had won the Audience Award for U.S. Documentary at the 2020 Sundance Film Festival.

Camp Jened, a camp in the Catskills for disabled campers during the 1970’s, is where everything begins. We are introduced to Judy Heumann, who not only leads campers, but organizes them to bring the disability movement to life. Ms. Heumann is a well-respected advocate for people with disabilities even today.

The documentary brought me back to a great childhood memory. It was one summer when I was about 4 years old.  A bunch of friends from school and our parents went to a sleep away camp. This was special because we were a group of kids that used wheelchairs. We had never had this kind of experience before. This was before the passage of the Americans with Disabilities Act of 1990, and as I think about it now, I am amazed that the organizers of the outing were able to find somewhere that could accommodate people in wheelchairs. We had the best time together, playing video games and just being kids. We had our wheelchairs to help us get around and didn’t even give it a second thought.

The documentary talks about struggles the disability community has endured and how the group of campers who kept in touch after camp, were able to make change in their community. They organized peaceful protests to get their message across to lawmakers. The changes they were able to make not only helped them as individuals, but future generations too. The changes implemented because of their efforts opened many doors for disability inclusion in society. It also talks about the passage of the Americans with Disabilities Act of 1990. The most interesting part of that segment was learning about the resistance that resulted after the law passed when implementing the changes that were required.

After watching it, I realized it was a good crash course in disability history. For someone who does not know very much about disability history, it gives various snapshots of what it is like to live with a disability in American society. One of the main messages laced throughout the documentary is that people with disabilities are just like anyone else who live with out a disability. That is something that is important for people to understand, even in today’s social climate.

I have said many times before that there is still work to be done toward disability inclusion. This documentary adds a human aspect to people with disabilities that isn’t seen very often.

“Crip Camp: A Disability Revolution” is a step in the right direction for more exposure of disability issues in the media. It also gives people the opportunity to see that people with disabilities lead full lives and are agents of change who can make a positive impact within their communities.

If you have Netflix, it’s a documentary you should definitely check out. I highly recommend it for anyone who is curious or interested in disability history. You don’t want to miss it.