Experiences of Parenting with a Disability Help Increase Disability Awareness

Mother’s Day is a time to celebrate mothers and all they do. Since Mother’s Day was this past Sunday, it made me think about how I’ve used the experiences of parenting with a disability I’ve had through the years. There are three main ways I’ve used my experiences. When I thought about it more, all of them are important to raising awareness of issues surrounding people with disabilities too.

Some people would say that parenting isn’t for everyone. The same could be said from the perspective of a parent with a disability. Every time I give my speech about parenting with a disability, the main message is to do your research before you make any choice.

In the beginning, I didn’t realize the challenges I would face when it came to the way people reacted to me being pregnant. The same was true after my son was born. I wasn’t even sure how I would compensate for my physical limitations. It was both exciting and left me with a sense of apprehension. I was also adjusting to the weekly changes my body was going through from the pregnancy. Some of those changes made life a little more complicated. I was happy to go through these challenges because of the new adventures and experiences parenting was going to allow me to have with my baby.

Because I realized that my son learns from my behaviors and how he sees me react to others, I didn’t want to give him a negative example. I decided to use the experiences and turn them into something positive. The three ways I highlight in this post can have a positive impact on society and the way it perceives people with disabilities in a variety of ways.

The first way is to educate the public. There have been times in a store or even when my son played soccer where people have confronted me with their misconceptions about people with disabilities. Sometimes they have said blatantly mean things to me about being in the outdoors or out in public.  Instead of having a negative reaction, I use the opportunity to let people ask questions. This approach is surprising to them but, I believe it’s the only way to help get rid of the unnecessary fear or misconceptions they might have. Most of the time it has created an ongoing dialogue with the people around me at the time it happens. Once people see there is an available space to ask questions, they seem more at ease. It allows them the chance to gain a better perspective into the human experience of disability.  Hopefully, it helps them not be so afraid at other times when they may encounter a person with a disability.

The second way is to advocate for issues related to parenting with a disability. Luckily, I have had previous experiences advocating for myself and others for different reasons. For someone who feels like advocacy is a scary or intimidating topic, it’s never too late to start sharpening your advocacy skills. It can be an exciting journey where you learn more about yourself and the way each organization functions. You can also tap into different avenues available in your community for help. Whether it has something to do with school, sports or getting to my son’s doctor’s appointments, I’ve had to advocate for different issues. Other examples include requesting needed accommodations to attend a parent teacher conference or using a delivery service to get a prescription. For the most part, once you express a need there are people around willing to lend a hand.

The third way is to foster a sense of acceptance and understanding of people who have different limitations. For example, it takes me a little longer to get on the floor and play with my son. He has  learned to be patient with me and even figured out ways to help. Having a parent with a disability helps children be more patient with their parents, themselves and other people. Because he has watched me adapt to different environments, he has a greater awareness of his surroundings. There have even been articles stating that children of parents with disabilities develop greater emotional skills and are more empathetic than kids whose parents are not disabled.

Everyone’s journey of parenting and parenting with a disability will be different. The most important part is to enjoy the ride because it goes by quickly. Parenting with a disability tests your strengths and limitations like you would never imagine. It provides great rewards that are worth every moment spent overcoming obstacles and sharpening your skills. The result is an experience no one can take away from you. It will strengthen the bond you have with your child for years to come.

Florida Disabled Outdoors Association

Physical activity is beneficial for everyone and people with disabilities can benefit and participate in different forms of activity too. This week, I have the pleasure of sharing information from the Florida Disabled Outdoors Association (FDOA). I want to thank Laurie Gussak, the Executive Director and David Jones, the President of FDOA for answering my questions and being open to letting me profile the organization.

1. Can you give me a brief description of the origins of FDOA?

It is rare that someone can take a “tragedy” as an opportunity to change their life and help others. That is exactly what David Jones did. His injury became a personal commitment to help others. In 1988, David Jones was shot in a hunting accident resulting in a serious head injury that left him with permanent paralyses of left leg, limiting mobility and no use of left hand. David utilized a wheelchair for one year, then gradually increased mobility to the point where he could walk with a walker and now walks with a slight limp without any device. He remains paralyzed in one arm. In the process of his rehabilitation, he became aware of the importance of recreation for rehabilitation – not only to improve mobility, but to improve mental well-being. David saw this event in his life as a challenge and an opportunity to assist others. This life changing event developed into his personal crusade.

David went back to school and received his bachelor’s degree and with his degree in Marketing learned that an effective organization fills a need that is not being met. David Jones overcame the challenge of his disability utilizing sports for himself and others by forming the Florida Disabled Outdoors Association in 1990. The Florida Disabled Outdoors Association has grown since that point to have multiple programs including, the Recreation Activity Program for Adults with Disabilities, ALLOUT Adventure Program, Miracle Sports, Community-Based Therapeutic Recreation for People with a Brain or Spinal Cord Injury and SportsAbility.

2. What are the requirements to become a member? An interest in improving the quality of life for people with disabilities through accessible, inclusive recreation

3. What is the cost of membership? $0

4. What activities are available to members?  We have a variety of programs.  More info can be found at http://www.fdoa.org/programs

5. Can you tell me some of the benefits of being involved in your Association? (In other words health wise or socially)

People with disabilities are often excluded from recreational pursuits and active leisure for a number of reasons.

  • There is a lack of barrier-free facilities and equipment.
  • There is a deficiency of inclusive recreation programs.
  • Staff is not trained to help people with disabilities to participate in recreation and active leisure.
  • There is a general lack of awareness about them and about the importance of physical activity.
  • The majority of people with disabilities finds it difficult to be motivated and inspired to participate in fitness and active leisure.  The message of the importance of active leisure for wellness has not been heard by people with disabilities because people with disabilities do not relate to traditional communication methods. This has been a serious deterrent to people with disabilities in receiving the message of the health and wellness benefits of recreation and an active lifestyle.

It is for these very reasons that the Florida Disabled Outdoors Association (FDOA), an organization dedicated to enriching lives through accessible, inclusive recreation and active leisure for all, seeks to deliver its programs.

6. Do you have any volunteer opportunities available to people who would like to help out? 

Volunteers are needed at all programs.  In addition, volunteer fundraisers, graphic artists and grant writers would be appreciated.

7. Is there anything else you would like to share? 

FDOA has seen that inclusion in all aspects of society begins with recreation and active leisure.  With the recent passing of Nelson Mandela, his words are ever present in our minds.

“Sport has the power to change the world…it has the power to inspire. It has the power to unite people in a way that little else does. It speaks to youth in a language they understand. Sport can create hope where once there was only despair. It is more powerful than government in breaking down racial barriers.”

You can also “Like” FDOA on Facebook

Thanks for reading..

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The New University of Florida Basketball Player

Since I was watching a pre-season NBA game earlier tonight, I guess it’s fitting that today’s post is about basketball.  Specifically, I’d like to spotlight The University of Florida for adding a basketball player who has a physical disability to their roster.  I graduated from the University of Central Florida, and anyone who knows me, knows how much I love the Knights but, a special kudos goes out to the University of Florida for making this choice.

I’ve written before about adaptive sports but, this is really great.  Zach Hodskins was born with part of his left arm missing but, it’s obvious he never let that stop him from what he wants to do in life.  It’s not about what you can’t do, it’s about knowing what you want to do and finding a way to get there.  I’m proud to read that he never stopped the way people looked at him from what he wanted to do. I have limited use of my left arm and hand and if I let the fact that people stare at me sometimes stop me from what I want to do in life, I wouldn’t have accomplished as many things as I have.  As I’ve said before any sort of sport whether it’s an adaptive one or if you can participate in a mainstream one, the most important thing is to stay active.

With younger people who are disabled positively influencing the younger generations, and showing the older generations that disability doesn’t stop us from focusing on our abilities, maybe we can begin to erase the negative stereotypes that unfortunately still exist.  Maybe then we could just be seen as people with different abilities like everyone else in this world.

What do you think about disabled people playing in mainstream sports?

To find out more about this story, you can check out the link below:

http://www.foxnews.com/sports/2013/10/22/one-armed-teen-commits-to-university-florida-basketball-team/

Thanks for reading..

cr

My Karate Experience

I know I’ve been talking a lot about adaptive sports, so, I figured in today’s post, I’d tell you a bit about how adaptive karate changed my life.

When I was about 17 years old, I was lucky enough for my mom to enroll me in Karate classes.  That’s right, Karate.  My mom had taken Karate herself for many years and I’m not exactly sure how, but I became interested in it too.  I do remember feeling a little nervous when I went to check out the class.  The kids all had different disabilities and they were much younger than me but, I decided it would probably be something exciting for me to do.

At first, I wasn’t sure how I was going to be able to do any sort of Karate since for the most part, I need my cane to get around outside my house.  I had no idea how much it would help me in the long run.  After a while, I was running around the Karate studio in the routine warm-ups the instructor had us doing and even sparring with him!

I didn’t realize how much I could actually do, not only in class with different stances and punches, but, it even started to help me outside of class.  My stamina increased and my balance got better! I couldn’t believe it! Yes, I was exhausted after class and did have some discomfort in my feet because I had to stand for longer periods than I was used to, and be barefoot, but, after a while, it wasn’t so uncomfortable.

I believe that staying as active as you can, even when you have a disability does help you in many ways.  No matter what your limitations may be, there are always options out there in the form of different activities for you to do and things for you to see.

What activity would you participate in if given the chance?

Thanks for reading..

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Derek Hough Dances with Brilynn Rakes

I was watching “Dancing with the Stars” last night and heard that the “AT&T Spotlight Performance” was going to feature Derek Hough and a legally blind dancer.  If you follow my posts, I’ve talked a lot about different adaptive sports.  Adaptive sports are a way for people who are disabled to go out and participate in different activities such as basketball, bowling and martial arts.  I feel like it’s important to get out there and be as active as you can, no matter your limitations.

When, I saw Brilynn dance with Derek, it was amazing!  Hearing her story about how she adjusted to learning dance, because she can’t see in mirrors at the studio was just great.  She didn’t go to any adaptive dancing classes but, instead, made modifications to the way she learned to dance on her own.  The way she’s found alternatives to accomplishing her goals just shows how we can all be inventive when we have something we want to achieve.  She even has problems with her balance but, that didn’t stop her either.

No matter what obstacles she’s faced in life, she found a way to make her dream of becoming a dancer come true.  We shouldn’t limit ourselves in what we want to do.  There are always ways to reach our goals.  Sometimes it just takes the encouragement of those who love us most and a belief in ourselves to make it happen.

To find out more information about Brilynn Rakes you can go to the link below:

http://beta.abc.go.com/shows/dancing-with-the-stars/spotlight-performances/s16-brilynn-rakes-bio

Thanks for reading..

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The Power of a Brother’s Love

I was watching Good Morning America this morning and learned about 9-year-old Connor and 6-year-old Cayden Long.  Cayden has Cerebral Palsy and his brother Connor decided he wanted to help him experience things that he may not have the chance to experience.   Connor knew that because of his disability, his brother wouldn’t be able to experience things  like other kids would.  Connor decided to run in triathlons with his brother so he could give him that opportunity.

They were just chosen as Sports Illustrated’s 2012 Sports Kids of the Year.  The interesting part of the story is that Cayden’s brother Connor has inspired his family to look at his brother’s disability in a new way.  Their mother was telling Josh Taylor, who interviewed them,  how she and her husband had grieved when they were told that their child was disabled.  Too often, parents of children who are disabled grieve for the lack of ability their child experiences in their lives because of a disability.

In my opinion, life with a disability is an opportunity to accomplish things in a different way.  I know it may be upsetting for a parent at first but, the way I look at it, I haven’t missed the things I have been unable to do so, I am not sad about being born with my disability.  I could be wrong but, I don’t believe children miss what they do not know.

I am very impressed that Connor, at his young age,  is and was able to show his parents and others the potential his brother has despite his disability.  It will be interesting to see how else Connor may advocate for his brother in the future and what else they might accomplish as a team.

Here is the link in case you would like more information:

http://abcnews.go.com/GMA/video/cerebral-palsy-sparks-brothers-conner-cayden-longs-triathlon-17552289

Thanks for reading…

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One Paralympics Untold Story

I know that the Paralympics ended some weeks ago, and to be honest, I was very surprised at the lack of coverage of these events.  While we were on vacation, I saw Spirit Magazine.  This is the Southwest Airlines in-flight magazine.  On the cover was Oksana Masters.

At first, it just looked like your everyday story of how someone made it in to the Paralympics (to be honest, I wasn’t really paying too much attention until I picked up the magazine).  Oksana’s story was not only about what she had endured at an orphanage in the Ukraine but, also about her disability and how it led her to compete in adaptive rowing.

It’s a shame that there is such a lack of coverage in the media of the Paralympics.   The general public not only misses out on hearing about the great triumphs that come to the athletes because of their participation in these events, but they also miss the background stories that can inspire people to reach for their goals.

To me, it is important to know that we are not alone in the world.  What I just wrote may sound silly but, there are a lot of people who are isolated in their homes because of daily barriers they face.  Maybe others don’t have those same barriers to contend with but still feel isolated from the rest of the world.   This also happens to people a lot these days because of the technological age in which we live.  This made me realize that there are a lot of untold stories from the Paralympics and Oksana’s is just one of them.

Stories such as this one give encouragement to many different types of people.   It lets them know they should never give up on their dreams, no matter how distant or unattainable they seem.

What are your sources of inspiration?

Thanks for reading..

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Gliding Stars: A Different way to Ice Skate

As the weather gets cooler, I start thinking about wearing sweaters, making chili and believe it or not, ice skating.  I have watched ice skaters on television before but, never knew that this was something I could do too, even with my disability.

A few years ago, I found out about Gliding Stars.  Gliding Stars is an adaptive skating program where people with all types of disabilities can get out on the ice and skate! You read that right, they ice skate.   You may ask yourself, how is this possible?  The program has adaptive equipment available that allows participants to get out on the ice and have fun, just like anyone else who skates in their spare time.

Even if you don’t have a disability, you can get involved too!  There are volunteer opportunities available that allow you  to help the participants skate out on the ice.  It is also a great way to get exposure, have interaction and build bonds with people you may not otherwise have a chance to meet.

Gliding Stars has chapters in such places like New York, Florida and Ohio.

There are also some great benefits to this program.  First, the participants get to experience something they would not otherwise have the opportunity to do.  There is also the aspect of getting out and doing something fun.  Next, they get to exercise with out really even knowing it!  The program also helps with the participant’s social development.  At the end of the season (which lasts from 12 to about 26 weeks), an end of the season show is performed, where the participants can show the public what they have learned.  This also helps increase their self-esteem because of the sense of accomplishment they feel from reaching their goals in the sport.

What other benefits do these types of programs have for the people involved?

If you want more information about this program, please go to www.glidingstars.org

Thanks for reading…

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