Perspectives on Parenting with a Disability

When it comes to parenting, there aren’t very many parents with disabilities in play groups, after school groups, or even recreational groups for our children. However, there are parents with a range of disabilities in society. Sometimes people are too caught up in our limitations to realize that people with disabilities can be successful parents too. The issues faced by parents with disabilities aren’t really known by mainstream society. We are still seen as people who are incapable of parenting because of our limitations. This misconception doesn’t stop people with disabilities from dreaming and planning to become parents.

Social media posts exist that tell parents to teach their children to be accepting of the kids with disabilities in their surroundings. The first ingredient is for the fear of disability to be erased in adults. People with disabilities are still seen as people who are constantly ill or can’t take care of themselves at all. There is the misconception that it is too cumbersome to afford us the accommodations to meet our basic needs.  People believe we live a miserable existence and there is little positivity that surrounds us. This may sound uncomfortable or difficult because some people don’t know where to start. The solution to overcoming this myth is to find out more information from reliable sources on disability. This should be the starting point to unveiling the unknown of what it is to really live with a disability. Unfortunately, society allows different forms of media to shape people’s frame of reference without having real life experiences to draw upon.

The reality is that people with disabilities are productive members of society who deserve the chance to not be judged solely on appearance. Parents with disabilities are still left in the shadows or criticized for their choice to become a parent in the first place. There are resources, support and pieces of assistive technology available that make the job of parenting with a disability a possibility for those interested in exploring that avenue and a reality to those that are already parents.  On the flipside, we are still parents to children who love us, who only see us as their parents and see our disability as secondary if even at all. It is rarely an issue to kids that we have any sort of limitation. Adding to the conversation of what parenting with a disability is really like is one way to add a layer to a topic that is rarely discussed. It is time that it be brought out of the shadows.

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Photo by Pixabay on Pexels.com

The way people with disabilities have been treated and portrayed by society has significantly changed for the better. There are more true-to-life stories being told. These accounts unmask what other people are so afraid to talk about. That doesn’t mean further change of people’s mindset surrounding our community couldn’t be accomplished. Acceptance of parents with disabilities is one of the components that could be used as a starting point to get the dialog of what living with a disability is really like.

This may seem like a tall order to fill, even in the 21st century. There are still societal and attitudinal barriers that are faced by the disability community regularly. These only seem to be amplified by mentioning the words parenting with a disability in the same sentence. There are so many related topics that are seen as taboo when you add the fact that some people with disabilities decide to have a family. There are still important issues like healthcare, relationships and over all well being that are ignored for people with disabilities because we don’t need those kinds of services. The reality of the matter is that we need more accessible information to be available so that we can have an increased quality of life. This information will help us make informed choices on the options of healthcare. That is when we will be able to make informed decisions about those subjects. The people who are most cherished in our lives need us to be healthy so we can participate in everyday activities.

It is important to raise awareness of parents with disabilities to the next level. People need to have the opportunity to learn more about what parents with disabilities must overcome even when making the decision of whether to go down the road of parenting in the first place. Sometimes people feel like parents that have a disability will become a burden to their children. Everyone’s child wants to take care of their parents as they age. Parents with disabilities are no different.

The conversations we have with our children and others around us are important in shaping the views people have surrounding a concept. The ideas shared on the subject with their children will help form the belief systems they will carry through their lives. If we can turn the tide to a more positive feeling surrounding disability, that would be a step in the right direction. Then there will be change and as a result mainstream society will see parents and people with disabilities in a more positive light.

Hopefully through the next series of content posted on the blog, questions will be answered and things that some people are afraid to ask will be answered.

Origins of The Mama’s Munchkin Blog

This year marks the 10th anniversary of starting this blog. In the past, when people found out I had created a blog they always wanted to know the reasoning behind it. So, I thought I’d take this time to give you the inside scoop on how it all started.

I originally started the blog because I wanted to set off on the journey of having a family. I knew that it wouldn’t be easy. I knew I was going to have to do some research and learn as much as I could about how my pregnancy would or would not affect my disability.  I knew I was going to come up against obstacles I hadn’t faced before in my life because of my disability. I was also curious about what technology was available to help me along the way. My first goal was to be proactive and start to solve the problems I could see up ahead. I began looking for information and resources on parenting with a disability.

I don’t think disability is as rare as some people make it seem. Due to an array of different reasons, the population of people with disabilities is growing regularly. Medical advances are also allowing people to live longer lives. We may have to think outside the box to overcome our obstacles but that makes it like a continual puzzle that needs to be solved until the next challenge arises.

Since the information I was searching for seemed nonexistent, and I had some experience writing, I decided to be a voice of information and educational resources. I also wanted it to be something fun so that whoever came across the blog could gain a positive understanding of what living with a disability was truly like.

So many times, disability has had a negative connotation surrounding it. Complicating things, I had run into people that were second-guessing my parenting abilities with no concrete evidence. They were making assumptions based on my outward appearance. Dating, family, and other topics that are of a personal nature always seemed taboo. Honestly, I’ve never seen those topics that way and wanted a place for people to know that we are all just human beings.

Becoming tired of seeing and hearing a lot of negativity surrounding living with a disability and the misconceptions people still have about it, I want people to understand it’s not the end of the world and people with disabilities are no one’s charity case. The blog is here as a source to get meaningful information on how to overcome each obstacle and find a better perspective on the best ways available to move forward under different circumstances. Anyone who is interested in learning more about this topic is also welcome on this journey. They can trust this to be a source where they can get pointed in the right direction and encouragement to achieve their goals.

I thought about how people would be frustrated and needed a reliable resource to look toward and know they weren’t alone. I had no idea what the blog would turn into. It’s been an information source that has raised awareness about different issues that are important to me and the disability community. It’s also been a place where people connect and find resources they need. I am happy that it has grown and has such a loyal readership. In the coming years I hope the blog continues to grow and be known as a source of reliable information and a place where people can leave comments to questions they might not otherwise feel comfortable asking in other settings.

Home of the Future

When I think about home accessibility, things like ramps, grab bars, and walk-in showers come to mind. While I realize the list I’ve mentioned is in no way all-inclusive of the modifications available to make a person’s home more accessible, recently, I ran into an article that discusses how new technology has the potential to increase someone’s independence by introducing various forms of technology and really takes this idea to the next level.

This article will discuss the advancements of technology and how it increases the independence of  people with disabilities.

For those with a disability, accessibility in your own home is like a breath of fresh air. At least I like to think of it that way. Not only have I worked with people to make their homes accessible and have had home modifications completed for my own home but many years ago I was invited to speak to a group of realtors and discuss homebuying as a person with a disability. 

The speech focused on the importance of accessibility for someone with a disability in their quest for home ownership and how different modifications and accessibility features were a necessity so that the homeowner could fully enjoy all of the amenities their home has to offer.

Binyamin Mellish at Pexels

Accessibility allows individuals with disabilities to do things for themselves they may not otherwise be able to do.

Now let’s talk about what I’m calling the “home of the future”.  The reason I’m using that term is because when I read this article that spoke of different types of automation like video doorbells and smart thermostats, it made me think of movies like “I, Robot” starring Will Smith, or even “The Jetsons”, a Hanna Barbera cartoon from the l980’s. Equipment I never dreamed would be available in my lifetime will be more readily available in the not-so-distant future. Lights being controlled by smartphones and voice-activated television guides for the visually impaired were just some variations of technology that were mentioned. This is definitely a game-changer to help people with disabilities thrive in their own homes.

Right now, there’s a significant cost for such innovative technology. However, there are currently some organizations offering assistance for individuals with disabilities to get the equipment and upgrades they need to make these pieces of equipment available to them. As the years go by, hopefully these gadgets won’t be so difficult for someone to obtain on their own so that independence is not so far out of reach.

The assistive technology we use every day not only helps people with disabilities be more independent but adds to our quality of life and self-esteem. It helps us accomplish this by increasing the number of tasks that we can accomplish independently.

The advancements being made now will only help us reach our goals more and more as time goes by. In the long run, there’s no limit to what people with disabilities will be able to accomplish.

What gadget interests you the most?

Author’s note: The article that was originally included in this blog post was no longer a viable link. Updated information on home automation can be found here.