Loss of Funding=Loss of Independence for Some?

This week I found an article that was a bit concerning to me. Many efforts have been made to de-institutionalize people with disabilities but this article seems to want to take a step back in time. I spend a lot of time writing about the importance of living as independently as possible within your limitations. The opportunity to live somewhere, other than with your parents when you reach 18 is like a right of passage for most young adults. It’s no different for those who live with a disability. The experiences we have building relationships, holding jobs and even volunteering enhances the quality of our lives like nothing else.

Day programs vary in what they do but I really like the one mentioned in this article. There are a bunch of activities ranging from work and play. Also, the residents aren’t necessarily restricted to staying indoors all day. The participants have their own apartments that give them an element of individuality too. A sense of community, where people don’t feel so alone, has also been fostered within the group. Friendships and social interaction between people is an important part of their environment and even trickles out into the community. Not surprisingly, funding is at issue, and these programs are in jeopardy of being cut. As a result, the residents will lose the predictability and stability of what they’re able to do.

It would be beneficial to all if other solutions could be found, instead of going to the extreme of cutting funding for these programs all together. More individualized approaches could be taken so  participant’s lives aren’t totally disrupted. Other solutions could avoid putting some participants in situations they can’t handle because of their disability. Since disabilities vary in how they affect people, it would be interesting to find out if some sort of assessment to determine level of need were conducted, how much could the program be changed to benefit both the State and the participant?

Unfortunately, programs for the disabled and or disadvantaged populations always seem to be the ones cut or downsized in some way that negatively impacts recipients. Maybe in the long run solutions can be devised so the quality of life of these participants won’t be negatively affected.

What do you think of the benefits these programs provide?

Thanks for reading..
cr

For more information check out the link below:

http://www.northjersey.com/news/changes-ahead-in-n-j-for-disabled-some-fear-loss-of-familiar-programs-1.1307297

Nursing Homes for Kids?

Institutionalization of the disabled has always bothered me.  It seems even sillier when you talk about placing kids into nursing homes.  Where is the thought of quality of life for these people?  While I do understand that these people are severely disabled and their quality of life may not be like yours and mine, they are still human beings.  Why diminish their quality of life even more by placing them in a nursing home if it isn’t necessary? 

In my opinion, it’s always a better option to keep people with their family members and in their homes when at all possible.  I also understand that there are times when this may not be an option for someone for various reasons.  The problem is that, at times, they aren’t even given any other option.

The article below seems to have some good ideas for steps in the right direction.  It talks about “care coordinators” being assigned to patients in the nursing homes.  The best part of the whole article is that if the program really works like it says it will, maybe one day people who really can be at home can have a “care coordinator” assigned to them in the comfort of their own home. 

Unfortunately, I think that the system currently in place is just the “easier” option.  If it weren’t for parents like the one interviewed in the article, most of these kids would probably be forgotten about.

Here is the link to the original article:

http://www.wftv.com/news/news/local/9-investigates-changes-floridas-care-disabled-chil/nTzNM/

Thanks for reading..

cr