Loss of Funding=Loss of Independence for Some?

This week I found an article that was a bit concerning to me. Many efforts have been made to de-institutionalize people with disabilities but this article seems to want to take a step back in time. I spend a lot of time writing about the importance of living as independently as possible within your limitations. The opportunity to live somewhere, other than with your parents when you reach 18 is like a right of passage for most young adults. It’s no different for those who live with a disability. The experiences we have building relationships, holding jobs and even volunteering enhances the quality of our lives like nothing else.

Day programs vary in what they do but I really like the one mentioned in this article. There are a bunch of activities ranging from work and play. Also, the residents aren’t necessarily restricted to staying indoors all day. The participants have their own apartments that give them an element of individuality too. A sense of community, where people don’t feel so alone, has also been fostered within the group. Friendships and social interaction between people is an important part of their environment and even trickles out into the community. Not surprisingly, funding is at issue, and these programs are in jeopardy of being cut. As a result, the residents will lose the predictability and stability of what they’re able to do.

It would be beneficial to all if other solutions could be found, instead of going to the extreme of cutting funding for these programs all together. More individualized approaches could be taken so  participant’s lives aren’t totally disrupted. Other solutions could avoid putting some participants in situations they can’t handle because of their disability. Since disabilities vary in how they affect people, it would be interesting to find out if some sort of assessment to determine level of need were conducted, how much could the program be changed to benefit both the State and the participant?

Unfortunately, programs for the disabled and or disadvantaged populations always seem to be the ones cut or downsized in some way that negatively impacts recipients. Maybe in the long run solutions can be devised so the quality of life of these participants won’t be negatively affected.

What do you think of the benefits these programs provide?

Thanks for reading..
cr

For more information check out the link below:

http://www.northjersey.com/news/changes-ahead-in-n-j-for-disabled-some-fear-loss-of-familiar-programs-1.1307297

Paralyzed Woman’s Weightloss Journey

One of the things I find most important is overall health. It doesn’t matter if you’re a person with a disability or have no disability at all, investing in your health should be a top priority. This week I found out about a woman, who despite her disability, has set a goal to lose weight.

I wanted to share her story because it just shows that anyone can lose weight no matter what activity they’re able to do. Even though Jamie has obstacles in her life, she’s determined to improve her health so that she can have a better quality of life to enjoy her husband and children.

It’s difficult for anyone to get motivated and lose weight. I give Jamie kudos because even though she also attempted to be a contestant on “The Biggest Loser” but wasn’t selected, she didn’t let that stop her from reaching her goal.  She even started a Facebook page titled “Wheelin Weightloss” so that people can follow along with her on her journey. This just goes to show no matter how limited a person may be by their disability, there’s always some activity available to help them lose weight if that’s what they want to do. Sometimes all it takes is a little research to see what’s available to help you meet your needs.

For more information on this story, you can go to:

https://shine.yahoo.com/healthy-living/this-mom-s-wheelchair-based-exercise-blog-will-totally-inspire-you-143902684.html

Thanks for reading..

cr

 

Another kind of Advocacy

I have been working on some things that are Advocacy related.  It is funny to me that people are surprised that I try to help other people and am not just in it for what I might gain.  A lot of disabled people feel like no one will listen to them so, they keep quiet on things they care about most.  Let’s not forget that we contribute to society too.  Maybe some more than others, but what we have to say counts.

I was watching “The Doctors” on t.v. the other day and one of the doctors (I think it was the OB/GYN) said the most important thing we can do for ourselves is be our own advocate when we are visiting our health care providers.  People feel like they are bothering their doctor if they ask a question during their visit.  If we do not participate in our own care, the providers who are taking care of us cannot do their jobs to the best of their abilities.  In this case, the only person being cheated is the patient.

When I was pregnant, I went to one of my appointments and had questions for my doctor.  He told me that most people don’t ask questions because they feel embarrassed about what they are asking.  I know there are some sensitive subjects that we may encounter during any kind of doctor visit but, if we don’t ask these questions, how do we expect to get the help we need?

If you have a disability, you should not feel bad when asking questions about your health either. I once met with a group that because they were disabled, were not even given the chance to learn to ask questions about their health.  To me, that is unfair, and in that case the person is not being treated like a person at all.  Everyone should have the ability to speak up when it comes to their healthcare and get the answers they need.  They should be able to know information about their own health at all times. 

How have you become more informed about your healthcare?  How have you participated in your own treatments?

Thanks for reading…

cr